Any advise is helpful

[bksmvh]

Hi, thank you for taking the time to read and address my concerns. I had posted here about a year ago and now that I have some new symptoms I was hoping I can get some help.

My symptoms started about 14 months ago. At the time it was mostly twitching all over, with pain and a heavy feeling in my left foot (cramping) and leg (calf, shin and thigh muscle). I went to a few neurologists and none knew exactly what it was, I had cervical and brain MRI, all clear. All they noticed was brisk reflexes all over. I have noticed that lately I am starting to feel these things such as pain in my calf, thigh burning etc in my right leg as well. I also have the feeling as though I am lopsided in my gluteus, like one side is more muscular and stronger than the other and my left side of lower back and gluteus is hurting me recently. Over the course of the last year and now that I have started to work, I notice I am dropping things more often here and there. I still feel the symptoms from a year ago with the increase of right sided issues and pains. I am sorry if I am confusing, for some reason I have a hard time articulating this.

Is this how ALS would present itself? I am 36 years old, female.

Again, thank you to anyone who takes the time to reply. I truly appreciate it.

 

[scaredwifetx]

Pain and burning are not presented in ALS and the increase in pain points to something else that may be going on with you. Laurie, Mike, Tillie others will chime in with better advice. I am new as a CALS but I know my husband does not have pain in his legs or arms. You can educate yourself and ease fears of ALS by reading the stickies for DHALS. Call your doctors and good luck with finding out what truly is going on. I am very happy that all your symptoms point away from ALS. It is a terrible disease and something you should not worry about any longer.

 

[GregK]

Few of your symptoms have anything to do with ALS, as you will see in the sticky titled PLEASE READ BEFORE POSTING. 8^)

Twitching is too common to be diagnostic of anything: 'normal' people twitch. Pain is not normally associated with ALS but can be secondary to cramping.

Atrophy follows weakness as the muscles no longer move.

So, no, that's not how ALS would present.

 

[lgelb]

Hi, Brooklyn, I agree that ALS is unlikely and evidently the neuros you've seen do too. But since your symptoms are changing, you might consider either circling back to the one who seemed most wise so s/he can assess any progression, and/or see a rheumatologist for evaluation.

If you have not already done so, doubling down on potassium, calcium, magnesium in your diet couldn't hurt, and even trying Mg lotion on your cramp sites. I would also make sure you're getting general bloodwork done annually. Good news is, you're in the wrong place here.

Best,
Laurie

 

[KimT]

It doesn't sound like ALS but I think you should go back to the doctor with your new symptoms. Could be so many easy things to fix like B-12 deficiency, magnesium deficiency, Vitamin D deficiency, etc. Maybe your primary care doc can do some bloodwork?

I wouldn't worry.

 

[bksmvh]

Thank you very much everyone. I very much appreciate the time you took to read and rely to me. May you all stay well.