Back with new EMG

[hollingusa]

Hi all. I have posted here before, maybe 1.5 years ago?
I started with twitching almost 3 years ago. It was body wide. Over time I felt muscle disappearing in left arm and right leg. Mild weakness followed. To this day it is not clinical although I personally know it is much much weaker than it was. What makes my situation weird is back in 2019 I had back pain. After getting an MRI, it was seen that I had paraspinal muscle atrophy and to this day no doctor could tell me why. Is it related to the current issues? Prob, but who knows. My 2 previous emgs were clean except for increased amp in my righr calf, which is here again but with company. Here is my emg chart and conclusion. I was hoping to see no evidence of mnd but it looks like hes changed his tune a bit and now its "we just csnt diagnose you yet" He did say he's betting against als still but like most, I believe I will hear that until its bad enough to diagnose. Can I get your kind folks' opinion please? Thank you

Some things that make me believe its a abnormally slow progression als is that my twitching and small cramps have settled into just my atrophied areas. The atrophy has been acknowledged by the neuro so its real. This has only been progressive, it has never gotten better.

 

[ShiftKicker]

Prev threads here, here, here and here

Hi there-

This is still not indicative of ALS. Your neuro says the same. By the language you use in your post, you disagree and still think you have ALS. While we completely understand the desire for certainty, it is not something you will find here- we simply can not help you with diagnosis. We've provided multiple threads worth of advice (read back over the links above), information and recommendations, but ultimately this is something you will need to work with your doctors to tease out. This is not because we are gate keeping or dismissing your concerns, but due to the fact this forum is not equipped to provide you with what you want it to- diagnostic certainty.

There are groups on facebook that provide peer support by other people who have unknown neuro issues (search: undiagnosed neurological conditions) that might be better suited to help you. You absolutely deserve care and support, however this is not really something this forum is able to provide. The focus here is on the day to day issues that arise with a confirmed diagnosis of ALS/MND.