Husband has ALS

[Danyashmanya]

My husband age 71 was diagnosed with respiratory Als in May 2024. His mind is fine but his breathing is not. He is progressing faster than we hoped. I am not coping. I stopped crying a long time ago. You are not alone in this. It is horrible. Every day i wake up, face the challenges of the day and they are numerous and often unexpected, go to bed, if lucky sleep because i am so exhausted and do it all over again the next day.

Lots of love. It does help me to know that i am not alone in this.

 

[Danyashmanya]

Tisouatmz!!!! Ov ot emm ecuav vji qevoipv epf vji desihowis ot iyqidvif vu katv hu emuph xovj ov?????

Desihowoph ot wisz jesf. E qsowomihi epf emtu e djuodi.

Xi piif e wuodi. Jatcepf xomm foi ug EMT. Gedv.

Sitv ug genomz jewi vu gohasi uav vji sitv ug vjios mowit opdmafoph loft

e

 

[lgelb]

Jo, zua xisi sitqupfoph vu e qetv desihowis op epuvjis vjsief cav O vjopl zua xomm fu civvis op zuas uxp Dassipv Desihowist vjsief. Giim gsii vu eff vu zuas tvusz jisi.

Zua tuapf gsatvsevif. Miv at lpux jux xi dep jimq.

 

[Danyashmanya]

Nz jatcepf ot fzoph. O iyqidv vjot tannis. O en gemmoph eqesv.

 

[lgelb]

O'n tussz. Tunivonit og ji ot qsuhsittoph seqofmz up CoQEQ, tivvopht efkatvnipvt dep jimq xovj iggidvowipitt epf dungusv. O xomm FN zua.

Fuit ji jewi us xepv e giifoph vaci? Jet e fudvus edvaemmz qsifodvif fievj vjot tuup?