Lack of Energy

[Mike in Maine]

This may not be my smartest question (I've asked many). Do any of you run into days where you have a massive energy outage. I get them with no pattern, just some days it takes everything I got just to move around, never mind leave the house. It is not depression, it is just no energy. Can't find a away thought it extra rest doesn't help, just have to let it run it's course.

Mike

 

[MaxEidswick]

>Do any of you run into days where you have a massive energy outage

yup

>just have to let it run it's course.

yup

 

[Green Queen]

Absolutely Mike. I don't have ALS, but the lack of energy is a huge issue.
Mainly, with hindsight, the few days before an energy free day have been busy.
Not flying around full rip, but probably trying to do too much for too many days in a row...then...that's it. My body just needs a break and will not take no for an answer.
It's very possibly just part of progression too, unfortunately.
I'm bad at taking my own advice, but pacing oneself is a very good idea.
All the best with it.
God bless, Janelle x

 

[bigmark1954]

Lack of energy is our nemesis......I have several days a week of total uselessness, just can't seem to get off my a$$ or 0 motivation.
I have learned that adequate sleep is mandatory, if I don't get at least 8 hours I have a listless day. Wish I had an answer for you Mike, but I don't think we can do any thing to change this dynamic.
On my semi-productive days, I pay the price the next day.
It is what it is..................

 

[scottsf]

Mike
I weigh 180 lbs and take 5mg of adderall on days I'd like to be in the game. Keeps my energy up but only for that day and doesn't work to well if taken everyday...at least for me

 

[anderkling]

Weakness and lack of energy is part and parcel of ALS. I experience it, too. Some days are better than others, but overall weakness is something I face every day, even though I sleep well at night. It is one of those things I cannot change, but just have to accept. I am careful to treat my body well with lots of rest during night and day, and good nourishment. I find any kind of stress makes it worse, so I'm careful to watch that, too.
Charlene

 

[LifeEnthusiast]

Yup, that's me too. Every so many days, I'm done and dusted. Yesterday was one of those days. I could manage time on the computer and a sleep in the afternoon. It is worse when I push myself too far and too hard. Unfortunately, that sometimes can't be avoided. I am out today and have decided to have another rest day tomorrow. Still can't shake this chest infection. Glad I'm not the only one but sad we are all in the same boat. Learning loads here. Thanks everyone. Rest up, Mike.

 

[tripete]

Lack of energy is our nemesis......I have several days a week of total uselessness, just can't seem to get off my a$$ or 0 motivation.

Same Here!

 

[Nuts]

We go through the same thing here. If my sweetie doesn't get an afternoon nap, he pays the next day. If he has a couple of active days in a row it costs him a full day in bed. More than one day if he gets up for a while on what should be his down day. Bad sleep nights don't help, either (of us). Two of our kids were here last weekend and I think having dad in bed at 7 pm and sleeping half the day in his chair came as quite a shock. As our son said, him in a wheelchair was one thing, him with no energy and sleeping all day is quite another. They are catching up...

 

[KatB]

Four months into my symptoms starting (1 yr January) I had them really bad, I would come home from work and not be able to move off the couch. A few months after that I started taking an adrenal supplement, it made an amazing Difference!I had to stop working this year because I couldn't speak anymore. The only down time I have now is when I don't take the adrenal support or don't eat enough. Not that I have all of my old energy back, but I only have a couch day once ever 2 weeks, if I do a lot I can tell but I recover quicker. I washed windows over the weekend & worked rings around my CALS. Not the answer for all I'm sure but we need all the help we can get!

 

[Gembead]

Hi KatB, can you tell me the name of the Adrenal support or is that it's name.
Love Gem

 

[affected]

Definitely a part of ALS as everyone has attested Mike

I would be careful about using stimulants in order to push yourself Kat. If you over-use your muscles that are being supplied by dying nerves you may just start progressing faster. The body tells us things. When we ignore it, or use stimulants to ignore it, we may be kidding ourselves for a little while, but it will catch us up...

 

[chally]

OH YEA! i git like that even though i tell self not to over do things i still want to git $hit done. yesterday big day, today rest day that's how it goes for me. STRESS suks! my enemy, i never was good at keeping it at bay,so i am having a crash course on it now. seems a common issue for us all. LETS ALL GO TAKE A NAP AT SAY 11AM EST THAT way we ARE ALL DOING SOME THING TOGETHER. TAKING CARE OF OURSELFS. 1love chally

 

[bigmark1954]

Definitely a part of ALS as everyone has attested Mike

I would be careful about using stimulants in order to push yourself Kat. If you over-use your muscles that are being supplied by dying nerves you may just start progressing faster. The body tells us things. When we ignore it, or use stimulants to ignore it, we may be kidding ourselves for a little while, but it will catch us up...

Tillie

Good advice......manufactured energy seems like a dangerous dynamic with MND.
I used to drink energy drinks almost every day (pre-diagnosis), but now rarely use them.
I still have 3-4 cups of coffee in the morning, which I feel no energy increase at all. All it does now days is make me have to tinkle every 15 minutes!

 

[Mike in Maine]

All,
That for the feedback. I think naps may just be the order of the day.

Mark
Agree on the coffee!


Mike