Lighthouse II terminated for futility ( Triumeq)

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Nikki J

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Joined
Mar 22, 2012
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17,825
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
 
Disappointing, but had been hearing rumblings for months on it.

Is it me or does it seem like in the past year there was so much further along in the pipeline and now very few drugs in later phases. 🤷‍♀️💔
 
Urgh :(
I have been taking Triumeq off label for over a year now. I don’t want to stop, while I’m still progressing at a slowish rate, I’ve not experienced any lung issues and very minimal swallowing issues- what if it has contributed to this? It’s heartbreaking.
 
Can your Neuro prescribe the 3 drugs in the cocktail so you can continue?
 
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