Maybe just someone to talk to

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Nelly

New member
Joined
Oct 7, 2017
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3
Reason
Learn about ALS
Country
UK
State
London
City
London
I haven’t told anyone what I am going through at the moment. Not even my family. I don’t want to scare them. But I am terrified. I’ve had body wide muscle twitches for a few months but mainly in my legs and my legs would ache easily. In the last week I felt some pain in my neck and noticed I couldn’t move my arms or use my hands as well at the computer. My jaw also kept getting stiff. I then noticed my left leg was weaker than the right.

I went to nuerologist who had sent me for an mri of my brain and neck a few months prior (it was clean) when I first got the twitches and aches in my legs. She noted that I had brisk-ish reflexes and a very twitchy tounge. She spent a long time looking at it, asking me to stick it out, rest it etc. Then she went quiet and started writing loads. She seems concerned.

I have an EMG tomorrow and am terrified. I’m going alone because I don’t want to scare my family just yet. Any advice on how to deal with this?
 
Also just to note I am a 31 year old female.
I also believe I have spasticity in my left leg because it feels constantly tense and won’t relax and aches.
 
Hi Nelly

Your symptoms don't sound familiar for what that is worth. Tomorrow is really soon so just try to keep busy- do something fun or at least something that takes all your attention. Let us know your results
 
I just wanted to update on my EMG results which were normal. I am still experiencing the strange weakness in hands and stiff jaw. I am going to work on my anxiety and see how i feel. I will go for a second EMG in a few months if symptoms don't improve or get worse. Thank you, Nikki for your response. I have so much admiration for everyone on this forum and the support that you all provide to each other.
 
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