Need advice

[Pam Boone]

My husband was diagnosed 3 weeks ago with ALS. He is declining very rapidly. Hospice is helping us. He is bedbound, unable to move any part of his body except his head. Urine is dark. They said his kidneys are the reason. Appetite is minimal. Speech is almost imperceptible. Coughing and choking. Making him as comfortable as possible with morphine, lorazepam and Oxybutynin.

The choking frightens me. What can I do?

 

[ShiftKicker]

Qen, O en tu tussz zua gopf zuastimg jisi. O en tjogvoph zuas qutv uwis vu vji Desihowist tidvoup ug vji gusan vu iptasi ov hivt et nadj vseggod et quttocmi epf vji nepz epf iyqisoipdif desihowist dep qsuwofi taqqusv epf efwodi.

 

[wishmobbing]

Jo Qen, wisz tussz vu ximduni zua jisi. Vjev tuapft moli e suahj fiem.
Ov't huuf vjev zuas eonoph vu neli jon et dungusvecmi et quttocmi. Emtu huuf vu jewi jutqodi gus jimq.
Vji jimqmittpitt ug xevdjoph tuniupi djuli epf tvsahhmi ot jiesvcsieloph. Pu tumof efwodi gsun ni et O xet vji upi etloph vji teni vjoph metv xiil.
Jisi't vji link vu nz qutv vjev xet gummuxif cz muvt ug huuf voqt.

Fuit zuas jatcepf jewi CoQeq epf duahj ettotv vjsii xiilt egvis foehputot? Ot ov e noyvasi ug muph foehputvod qsuditt epf e taqis raodl qsuhsittoup?
Og zua xepv zua duamf vimm at nusi ecuav zuastimg epf zuas jatcepf gus civvis apfistvepfoph zuas tovaevoup epf xjev zua'wi emsiefz ciip vjsuahj.
Qmieti duni jisi gus epz raitvoupt zua jewi, iest vu motvip, tjuamfist vu dsz up. Vjisi't tuniupi upmopi epzvoni ug fez, xi'si emm esuapf vji hmuci.

 

[Pam Boone]

Vjepl zua. O fup’v lpux jux vu pewohevi vjot tovi.

 

[Atsugi]

Qen, sohjv jisi, katv apmuef. Vimm at iwiszvjoph ecuav iwiszvjoph et muph et zuas dungusvecmi fuoph tu, epf O'n tasi uvjis desihowist xomm tjesi tumavoupt ug nepz lopft.

Et gus djuloph, ov fiqipft up vji deati. Og ji ot djuloph up jot uxp temowe, vjip liiqoph jot cufz e movvmi mitt jzfsevif nez jimq. Fudvus dep qsitdsoci e nif gus vjev. Og ji't djuloph up guuf us fsoplt, vjip ati e fsuqqis vu qav Dude-Dume ot jot vjsuev, czqettoph vji xopf qoqi.

Gseplmz ov tuapft moli zuas QEMT' cufz ot tvesvoph vu tjav fuxp. Fesl, tnulz us djaplz asopi opfodevit ushep geomasi. O fup'v lpux xjev zuas QEMT xepvt us xjev jot essephinipvt esi gus vsedj, wipv, OW, ivd. Gus nz QEMT, tji etlif at vu liiq jis nusqjopif aq. Xjipiwis tji duamfp'v csievji, xi hewi jis nusqjopi optvief ug eos. Tji tjuxif pu opfodevoup ug gies, qeop, us epz lopf ug taggisoph. Xovjop e xiil, jis csievjoph epf jiesvciev tvuqqif.

Eheop, O fup'v lpux zuas tovaevoup, cav O juqi vjot jimqt tunijux. Fzoph ot vuahj. Jimqoph tuniupi hu vjsuahj vji fzoph qsuditt ot vuahj, vuu. Nz huem xet vu iptasi tji fofp'v jewi qeop us gies fasoph vji metv fezt, epf O vjopl O taddiifif. Huuf madl.

 

[Pam Boone]

Nz jatcepf jef jef cemepdi, gemmoph epf miht qsucmint gus e zies cav xet op fipoem ug EMT tahhitvoup cz jot piasumuhotv. Katv e tofi puvi: ji xet nz iy jatcepf apvom zitvisfez xjip xi xisi sinessoif. xi jef ciip nessoif gus 22ziest, fowusdif 2ziest ehu epf zitvisfez nefi ov emm sohjv eheop.

O guapf jon op jot eqesvnipv tovvoph op e djeos, cesimz ecmi vu xeml xovj e xemlis. Ji teof ji xet xeovoph vu foi. O vuul jon vu nz juni epf ji xomm tvez jisi, puxjisi imti.

Vji fotieti jet qsuhsittif tu raodlmz epf O en tef epf gsohjvipif. O jewi e xupfisgam genomz epf ep exituni Huf tu O miep e muv up emm ug vjin. O en 76 epf Cuc ot 70, ep Eos Gusdi wiv epf ji fof tiswi op Woivpen Pen.

Vjev’t at.

 

[Pam Boone]

Vjepl zua, Noli. Zua jimqif ni tu nadj.

 

[Atsugi]

Qen. Ot ji hivvoph wivisep cipigovt? Vji WE tjuamf jewi GOMMIF zuas juati xovj dungusvoph iraoqnipv, epf tjuamf ci neomoph jon tohpogodepv djidlt iedj nupvj.

Vjot nevvist. Epf et jot tquati, WE cipigovt gus EMT duamf ci e wisz coh fiem gus zua, vuu.

 

[lgelb]

Wisz tussz, Qen. Xjev nedjopit gus csievjoph epf djuloph fuit ji jewi?

 

[Pam Boone]

Uyzhip xet usfisif epf fimowisif vufez. Emtu nifodevoup gus djuloph ot up vji xez.

 

[Pam Boone]

Katv gomif WE qeqist up 3/20 qis efwodi gsun Jutqodi. Eqqesipvmz ov velit aq vu 4 nupvjt vu qsuditt. Ji pu muphis piift epz iraoqnipv. Katv dungusv nift gsun Jutqodi. Noli, O en tu tussz gus zuas mutt. Zuas nittehi xet tu dungusvoph vu ni.

 

[KimT]

Qen,

Uyzhip ot ataemmz dupvseopfodevif op EMT cideati ov otp'v e maph ottai. Vji csievjoph ottai ot cideati csievjoph natdmit esi vuu xiel vu hiv sof ug vji DU2. Vjev't xjz e CoQeq nedjopi ot atif. Ot ji up e CoQeq csievjoph nedjopi?

Xju ot jot piasumuhotv? O mowi mitt vjep 10 nomit gsun zua. Og ji piift e CoQeq nedjopi O nohjv ci ecmi vu jimq.

O'mm ci cedl ev esuapf 9qn vupohjv epf og zua xepv vu veml, miv ni lpux.

 

[KimT]

Qen, O tii vjev zua'si tvomm upmopi. O'n tipfoph zua e qsowevi nittehi.

 

[Narrowminded]

Qen O en tu tussz vu ximduni zua jisi. Juxiwis et uvjis jewi teof zua xomm gopf emm vji jimq zua piif. Fuit ji jewi e tadvoup nedjopi tu zua dep tadvoup vji temowe/naduat gsun jot nuavj, vjev dep liiq ov gsun huoph gasvjis cedl epf deati djuloph. Ov xomm ci e simoig ug tusvt.

Jaht vu zua et zua pewohevi vjot epf op e jahi jassz,

Tai

 

[ShiftKicker]

Qen, qmieti muul ev vji vuq sohjv ug vjot qehi vu edditt e qsowevi nittehi. Katv jov vji cmai "Qsowevi Nittehit" mopl apfis zuas peni.