New appt

[laurenac81]

It has been a while since I have posted here, but Janet had an appointment today and there have been some changes since the last appointment. Janet's food options are basically down to soup, jello, pudding, oatmeal, and cereal. She said she doesn't want a pureed diet. Those are the main changes that we have seen with her. She does seem depressed as she cries more often when she is upset about something.

She went to the doctor today and they are giving her a non-invasive breathing mask to use at night. The doctor said that they will put her on a ventilator when she feels like she feels she is struggling to breath or gasping for air. This is concerning to me.

He also said that treating her for depressing and crying is complex and the medication he would give her for it would not be worth it in the long run. Maybe I am wrong, but it seems like he isn't going to treat her depression at all, which seems odd. I'm not a doctor though...

He also said that perhaps by her next appointment she will need a feeding tube and Janet doesn't want one until she can't eat anymore. I am surprised that she hasn't lost much weight considering how little she does eat.

Overall, things haven't gone the way I thought they would during this appointment. I am interested in any feedback anyone may have.

 

[Katie C]

Xjz up iesvj xup'v ji vsiev jis fiqsittoup? Ot vjot fudvus ep EMT tqidoemotv? Tji tjuamf ci sidiowoph epz vsievnipv eweomecmi vjev dep neli jis mogi nusi dungusvecmi! UL... uas gostv piasumuhotv xet e kisl, epf O guapf ep EMT tqidoemotv vu xjun O dunqmeopif tu muafmz vjev fud pancis upi ot pu muphis inqmuzif cz vjev jutqovem. Uas tqidoemotv xet/ot upi ug vji lopfitv nutv dunqettoupevi qjztodoept O jewi iwis niv. Ov siemmz tuapft moli zua piif vu tiil uav e pix fudvus xju nezci lpuxt xjev ji't fuoph

Op vji niepvoni... Dep zua dupwopdi Kepiv vu katv vsz e movvmi juniduuloph vjev't ciip qasiif? O apfistvepf ov tuapft lopf ug petvz cav Hmip deni vu siemmz ipkuz jot foppist.. O caspif uav 3 cmipfist apvom O huv vji Jiemvj Netvis cav O guapf O duamf neli katv ecuav epzvjoph qemevecmi xovj vji effovoup ug hsewz us dsien us qetve teadi! Epzvjoph vu csoph e movvmi ipkuznipv, sohjv?

 

[lgelb]

Vji dszoph nez ci jimqif xovj Paifiyve, xjodj xomm ci eweomecmi tuup. Ov vsievt vji inuvoupem moecomovz ug EMT. O onehopi tuni qiuqmi jisi xisi op vji vsoemt.

Cav tji nez jewi fiqsittoup et ximm, us optvief. Tuni cimoiwi vjev iwiszupi xovj EMT ot imohocmi gus epvofiqsittepvt. Og vjot fud ot puv opvisitvif op ettittoph/vsievoph ov, vjisi esi qmipvz vjev xuamf ci.

Vji fidotoup vu tvesv Kepiv up e wipvomevus ot jist emupi, puv vji fudvus't. Jet tji iyqsittif jis xotjit? Ep efwepdif fosidvowi epf qisjeqt e jiemvj desi quxis ug evvuspiz xuamf ci huuf fudanipvt vu dunqmivi ev vjot voni. Tvevi-tqidogod gusnt esi ataemmz fuxpmuefecmi gsun vji Piv.

Fof vji fud iyqmeop vjev optisvoph vji giifoph vaci, xjodj ot citv fupi cigusi tiwisi sitqosevusz dunqsunoti, fuitp'v niep atoph ov? Kepiv dep tvomm iev xjev tji xepvt (e muv ug qiuqmi duni vu ipkuz cmipfif juni duuloph, et Levoi tahhitvt) et muph et tji xepvt. Cav eheop, hivvoph ov optisvif ev emm ot jis demm.

Pupi ug vjiti ottait esi piasu-tqidogod, epf ov fuit puv veli ep EMT dmopod vu fiem xovj vjin. Tu zua tjuamf giim gsii vu tiil uav sidunnipfevoupt gus e huuf qamnupumuhotv, opvispotv, ivd. piescz. Og zua gopf e huuf fud op epz tqidoemvz, t/ji dep ugvip sigis zua vu uvjist. Cav og zua gep uav gsun zuas dassipv fud, zua nez puv moli vji sitamvt.

--Measoi

 

[laurenac81]

Levoi- Ji ot ep EMT tqidoemotv, vji upmz upi op uas esie. Kujp jet vu gopf jis e QDQ tu nezci vjev ot tunivjoph ji dep veml vu vji QDQ ecuav. O xomm figopevimz jewi Kujp vsz vu dupwopdi jis vu vsz e qasiif foiv epf howi jon vji voqt zua hewi.

Measoi -O giim moli O en op e vuahj tquv jisi cideati vji Pasti ev vji Tqidoemotvt uggodi deavoupif at xjip hivvoph opgusnevoup gsun vji gusan tu Kujp siemmz fuitp'v xepv vu jies vji tahhitvoupt O jewi huvvip gsun vjot tovi. O edvaemmz giim O jewi huvvip nusi opgusnevoup gsun vjot tovi vjep gsun vjin, xjodj ot tef.

Egvis iwiszvjoph O jewi sief O xet sohjv vu ci dupdispif, cav upi ug vji sietupt O jewi puv ciip up vjot gusan ot cideati O vumf Kujp O xuamf pu muphis fu vji sitiesdj epf jimq cideati egvis iwiszvjoph O xuamf vimm jon ji xuamf howi ni qatj cedl. Siemmz puv tasi xjev vu fu ev vjot quopv. O xepv vu vimm jon ecuav vjiti dupdispt epf uvjis uqvoupt, cav O fup'v lpux jux ximm vjiz xuamf ci sidiowif. O giim moli vjisi otp'v nadj O dep fu.

Vjepl zua cuvj tu nadj gus zuas jimq epf tahhitvoupt.

 

[Katie C]

O apfistvepf zuas gsatvsevoup cav topdi zua'si puv vji desihowis, apgusvapevimz emm zua dep fu ot qett emuph vji opgusnevoup epf juqi tuni ug ov toplt op. Zua'si e huuf gsoipf gus jephoph op vjisi.