SLAUGHTER1555
Distinguished member
- Joined
- Jul 12, 2015
- Messages
- 107
- Reason
- CALS
- Diagnosis
- 05/2015
- Country
- US
- State
- Oh
- City
- cincinnati
Good morning Cals and Pals so woke up hurting so bad think my fingers one on each hand is kinda sprang. It's hard to hold things and if I pull or rug at anything it hurts so bad. I already had GERD but lately it's been bad probably due to improper eating and stress eating lately. I don't know how much more of this I can take physically, we don't have a wheelchair van we have a Buick Lacrosse that I transfer my non mobile pals in and out of. It had become extremely difficult to the point we had some stRangers had to help get him off the ground and back in the car due to him not being able to stand.
He really think he can keep doing things this way smh and he can not. Today we're supposed to go to the grocery store and he wants to use a transfer board to get from the car to an electric grocery cart!! Really! He said let him try to transfer himself smh he can't even stand his hands are starting to curl a lil it's like you can't do this baby.
I mentioned before he goes to the chiropractor 3x a week well I told him I can't due it anymore, I told him in a loving way I am not going to continue to brrake down trying to do everything he wants. I talked to our local ALS person and told her and she agreed no one who has ALS can be transported in a car like the way we're doing it! It's not normal! I'm to the point I'm ready to call it quits seriously we have no help at all.
Because of his income can't get any home care services but 1 hour for bathing, his daughters have car issues so no one can come get him and they have lil kids like oldest is 5 so they can't be here to help physically. I have no help to handle him day to day. We're supposed to move to Atlanta with his son in June or July so we can get help but I don't think that's what the son really wants.
More and more a nursing home is the solution that will help us financially and me physically but he does not want to go to one cuz they take all your money to pay for the facility. I don't know what to tell him but I can not keep doing things this way.
I've been sleeping on the couch while he sleeps in his recliner I can not tell you how bad my body hurts I told him I need to go back in the bed. He has a hospital bed in the room too but can't sleep in it don't know why but he has trouble sleeping in it.
I feel a lil bad because I don't want him to think I don't want to help him or try all things possible to make him better but to me going to the chiropractor 3x a week makes him feel good but it is not going to cure ALS or health his muscles. Until we can get a wheelchair van I am not going to anymore appointments if it's not life threatening or a medical necessity. I told him I don't want him to think I'm violating his rights cuz he have a right to go to a chiropractor but I have rights too. I am honoring my vows but it does not say I have to kill myself in the process.
I hope I'm not wrong for feeling this way. I need to get to a doctor myself but can't afford the co-pays and I have to get someone to sit with him. Until I can get my health checked out I'm done tugging and pulling. Something has to give and as much as I love my husband i truly don't know how much more of this i can take.
He really think he can keep doing things this way smh and he can not. Today we're supposed to go to the grocery store and he wants to use a transfer board to get from the car to an electric grocery cart!! Really! He said let him try to transfer himself smh he can't even stand his hands are starting to curl a lil it's like you can't do this baby.
I mentioned before he goes to the chiropractor 3x a week well I told him I can't due it anymore, I told him in a loving way I am not going to continue to brrake down trying to do everything he wants. I talked to our local ALS person and told her and she agreed no one who has ALS can be transported in a car like the way we're doing it! It's not normal! I'm to the point I'm ready to call it quits seriously we have no help at all.
Because of his income can't get any home care services but 1 hour for bathing, his daughters have car issues so no one can come get him and they have lil kids like oldest is 5 so they can't be here to help physically. I have no help to handle him day to day. We're supposed to move to Atlanta with his son in June or July so we can get help but I don't think that's what the son really wants.
More and more a nursing home is the solution that will help us financially and me physically but he does not want to go to one cuz they take all your money to pay for the facility. I don't know what to tell him but I can not keep doing things this way.
I've been sleeping on the couch while he sleeps in his recliner I can not tell you how bad my body hurts I told him I need to go back in the bed. He has a hospital bed in the room too but can't sleep in it don't know why but he has trouble sleeping in it.
I feel a lil bad because I don't want him to think I don't want to help him or try all things possible to make him better but to me going to the chiropractor 3x a week makes him feel good but it is not going to cure ALS or health his muscles. Until we can get a wheelchair van I am not going to anymore appointments if it's not life threatening or a medical necessity. I told him I don't want him to think I'm violating his rights cuz he have a right to go to a chiropractor but I have rights too. I am honoring my vows but it does not say I have to kill myself in the process.
I hope I'm not wrong for feeling this way. I need to get to a doctor myself but can't afford the co-pays and I have to get someone to sit with him. Until I can get my health checked out I'm done tugging and pulling. Something has to give and as much as I love my husband i truly don't know how much more of this i can take.
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