Really worried

[johnny3]

I want to be reassured and continue with my life but nothing is improving. While returning to this forum today I came across user Ben335, whose symptoms are exactly like mine-some twitching, no real weakness, I can lift heavy objects but everything I hold no matter the weight is heavy. I can walk on toes and heels, I can run. But after any type of workout muscles are tight. I can do single-foot stands on both feet, but it's a challenge. It's more difficult now then jt was two-three weeks ago.
The emg was ok, the neuro said - you don't have als. She wouldn't say that if she wasn't sure. But, did she do it correctly? But she didn't test thighs and that's were 90 percent of the twitches are. And I've read several stories on this forum of a good emg that later turned out to be als.
I feel like more and more things indicate that there is something wrong and I am turning a blind eye to it. For the first time in my life I am afraid of finding out.
I can't get an appointment with the neuro for at least 10-15 days. I know you guys aren't doctors. I can't tell my wife this anymore, it's not fair to worry her. it's like I am just waiting for something to escalate for the worse

 

[Nikki J]

Aside from anything else Ben is not diagnosed with ALS

 

[lgelb]

You can find a lot more users here -- literally, thousands over the years -- it's the most common reason that people get worried about ALS from what we see.

That large number means absolutely nothing in your situation except there are a lot of people out there who think they have ALS and don't. Again, you are anxious, have recently started supplementing, have nutritional imbalances, and are sometimes dehydrated. I guarantee that if you spend the time you are spending worrying about ALS on these things, you will feel better soon.

Don't forget to stretch (not just warm up) before you run or work out.

 

[johnny3]

Thank you both

 

[johnny3]

Hi again. Here's some update. Twitches have continued, and are still mostly in right leg, and a few in the left with occasional lip.
Last week I have notices some sort of a dent in my left for arm (this is the arm in which things are heavier, it shakes when I hold my phone or sth). I've went to see my doctor and she also noticed it, but we are not sure is this a new development or I had it before. I'm worried that it is new, because I've been checking myself for the last couple of months and would notice something like that. It is not big when measured but is clearly visiable and different then the other side.
I have an appointment with the neuro on tuesday
If you can give some insight
1. The muscle in question is flexor carpi ulnaris. This muscle wasn't tested by the emg. Is it possible that emg was clean because it didn t test this muscle?
2. If I have visiable atrophy due to als, wouldn t it be very obvious in function? Not just heavier and things like that
Thank you for your time

 

[Nikki J]

No
Yes
Dents are not atrophy

 

[johnny3]

I don't know how to describe it. It's a few cm long flattening. Guess the neuro will say what it is

 

[ShiftKicker]

Yes, that is best. Please ask your doctor, as you have been cleared of ALS by your recent EMG.

 

[johnny3]

I have had a sort of a double check by the neuro. It was the same as my first 3 months ago. The thinner hand was said to be natural asymmetry. Balancing issues which I noticed on the left foot were to some muscle week es (did not remember which ones), but she said that it was probably do to a prior injury.
I mentioned leg fatigue which is stronger and continued twitching. They told me that I should first do a blood test for electrlytes and magnesium levels and try to change magnesium to magnesyum glycinate and to monitor for any change for the worse.
Does anyone have similar experince? Twitching and fatigue for so long?
Any advice, besides the doc's

 

[Clearwater AL]

You have been cleared of ALS by your recent EMG.

Twenty three replies, 18 messages, numerous questions many followed
with very knowledgeable advice.

It's time for you work with your doctors. There really isn't much more this
Forum can help you with now that you have a clear EMG.
Great news to so many others.

Hope you can find the path to move on from ALS with your doctors.

 

[ShiftKicker]

Yep,

It is time to move on. You have been cleared of ALS and the people here will not contradict that. If you have further questions about your health, you must go back to the doctor to discuss. This forum is not able to assist with non-ALS issues.

I am closing this thread. Please do not open another.

Take care