JacksBently
New member
- Joined
- Mar 14, 2024
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- Massapequa
hello and thank you for reading this. I’m sorry at this point that I am even here. I’ve been following these threads since my symptoms started in November and have taken Solace in the sticky notes that the moderators have put in place. I fully believe I know the outcome of this post and I’ve been fighting it off but I am just looking for some insight.
November 8th I noticed I had slight twitching in my right calf muscle. Since that night it has become progressively become worse over the past few months. It looks like there is something in my leg moving all over the place. The twitching is noticeable and non stop all day long. My wife notices it when I’m sleeping. Not to give a full timeline layout and keeping this short and sweet I took and break from the gym and my mma classes which did not help. Went to Two Neuro who both said it was BFS. Second Neuro did a full EMG and EEG and said results were perfect.
It’s now months later and both my calves are spasming. right never stops left is slow the way my right started. I get random twitches all over .rear end, chest, thighs back. It’s non stop. There is pain in both of my legs all the time.
Based on everything I’ve read here negative EMG results(gold standard). Spasms in multiple spots, pain no muscle waste or atrophy. I’m also only 36 with no family history. All points away from ALS and confirms BFS. I guess I’m here because I don’t know what to do next. I have a rheumatology appointment tomorrow and another neuro in two weeks. If it was just the spasms I could deal but my legs are in pain and constantly feel like I’ve run a marathon from my feet through my thighs.
Thank you and sorry
November 8th I noticed I had slight twitching in my right calf muscle. Since that night it has become progressively become worse over the past few months. It looks like there is something in my leg moving all over the place. The twitching is noticeable and non stop all day long. My wife notices it when I’m sleeping. Not to give a full timeline layout and keeping this short and sweet I took and break from the gym and my mma classes which did not help. Went to Two Neuro who both said it was BFS. Second Neuro did a full EMG and EEG and said results were perfect.
It’s now months later and both my calves are spasming. right never stops left is slow the way my right started. I get random twitches all over .rear end, chest, thighs back. It’s non stop. There is pain in both of my legs all the time.
Based on everything I’ve read here negative EMG results(gold standard). Spasms in multiple spots, pain no muscle waste or atrophy. I’m also only 36 with no family history. All points away from ALS and confirms BFS. I guess I’m here because I don’t know what to do next. I have a rheumatology appointment tomorrow and another neuro in two weeks. If it was just the spasms I could deal but my legs are in pain and constantly feel like I’ve run a marathon from my feet through my thighs.
Thank you and sorry
