bleegm
New member
- Joined
- Jul 1, 2025
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hey y'all, I'm a 26M who's been dealing with fasciculations for almost a year now. I've also been experiencing atrophy but its not specific to one area. My entire body is atrophied from shoulders, to arms, to hands, to legs, to thighs, etc. So obviously its not extremely noticeable atrophy and I mostly contribute that to may lack of working out (haven't been to the gym in over a year) and also chronic stress. I've been dealing with a variety of health issues for a year and finally might have a working diagnosis which is a rare blood disorder (not like blood cancer, but just a chronic disorder). Also since my twitching has been around for almost a year, I definitely did not attribute that to ALS given the lack of weakness, etc. Also my twitching (although it started in the feet/legs) have transitioned to all over body. No specific hotspot and lasts maybe about 1 min or two between episodes.
But more recently, about 2 weeks ago, this all changed. So i began to have pins and needles feeling bilaterally in both palms of hands. At first i attributed this to possible neuropathy as my condition can attack the nervous system. Didn't think much of it besides maybe supplementing with B12 and getting my doc to check it out. Fast forward a few days after, I go to my docs to get my injection for my condition. Its my second time getting the injection so i don't believe that its an immune reaction issue. Anyway, this time, I got the injection near my tricep/shoulder area as opposed to directly on my shoulder or stomach like i usually do. After the injection, it hurts and aches more than usual but it goes away by night so I forget about it. However, about 2-3 days later, my left arm (the arm that I got my injection in) starts to feel very odd. It feels very tight, pressure like, and weak. Even at rest, it feels like someone is actively working out my arm when I haven't work out in over a year. The easiest way I can describe the feeling is the feeling that you get during an arm workout and you start to feel the burn (not a temperature feeling burn but like muscle fatigue kinda burn). But like all day. This makes my arms feel very weak and like its constantly giving up, yet I can still do all things. But the things that I do a bit weirder in feeling. It feels very sensitive and weak. Like I can hold up my phone for like 5+ min but the entire time, my arms feel weak, shakey, and similar to how it feels when your holding your arms up over your shoulders for too long. This is a constant feeling and my fingers also feel like its locking up/spatisticy but I can immediately move it in every direction that I want even when that feeling occurs.
Now I'm not too sure if this is the beginning of possible ALS. If this weakness is the sign that something is bad or if this is a possible nerved related injury due to the injection. What makes me worried is the unilateral nature of the weakness. My arms feel so tired, weak, fatigued, and like its about to drop but yet I can still drive, type, hold a 32 oz water bottle with just fingertips, etc. Not sure if this is the beginning stages and if failure will start to come or not. Neuro appointment is all the way out to August so nothing I can do till then. Just wanted to get some thoughts or opinions? Only affected area is left arm. I still get pins and needles soemtimes, but its subsided a lot. Not sure if its because I started taking B12 or not, but its less noticeable and frequent now. But when do i get it, its still bilateral.
Any thoughts or advice will be appreciated, thank you.
But more recently, about 2 weeks ago, this all changed. So i began to have pins and needles feeling bilaterally in both palms of hands. At first i attributed this to possible neuropathy as my condition can attack the nervous system. Didn't think much of it besides maybe supplementing with B12 and getting my doc to check it out. Fast forward a few days after, I go to my docs to get my injection for my condition. Its my second time getting the injection so i don't believe that its an immune reaction issue. Anyway, this time, I got the injection near my tricep/shoulder area as opposed to directly on my shoulder or stomach like i usually do. After the injection, it hurts and aches more than usual but it goes away by night so I forget about it. However, about 2-3 days later, my left arm (the arm that I got my injection in) starts to feel very odd. It feels very tight, pressure like, and weak. Even at rest, it feels like someone is actively working out my arm when I haven't work out in over a year. The easiest way I can describe the feeling is the feeling that you get during an arm workout and you start to feel the burn (not a temperature feeling burn but like muscle fatigue kinda burn). But like all day. This makes my arms feel very weak and like its constantly giving up, yet I can still do all things. But the things that I do a bit weirder in feeling. It feels very sensitive and weak. Like I can hold up my phone for like 5+ min but the entire time, my arms feel weak, shakey, and similar to how it feels when your holding your arms up over your shoulders for too long. This is a constant feeling and my fingers also feel like its locking up/spatisticy but I can immediately move it in every direction that I want even when that feeling occurs.
Now I'm not too sure if this is the beginning of possible ALS. If this weakness is the sign that something is bad or if this is a possible nerved related injury due to the injection. What makes me worried is the unilateral nature of the weakness. My arms feel so tired, weak, fatigued, and like its about to drop but yet I can still drive, type, hold a 32 oz water bottle with just fingertips, etc. Not sure if this is the beginning stages and if failure will start to come or not. Neuro appointment is all the way out to August so nothing I can do till then. Just wanted to get some thoughts or opinions? Only affected area is left arm. I still get pins and needles soemtimes, but its subsided a lot. Not sure if its because I started taking B12 or not, but its less noticeable and frequent now. But when do i get it, its still bilateral.
Any thoughts or advice will be appreciated, thank you.
