Temperature sensitive....

[Clearwater AL]

During the day when I’m sitting in my chair at my desk with an under shirt, shirt and pants on my body seems to be very sensitive to the room temperature, 78 seems too warm but 75 feels chilly. Is such a three degree difference common to other PALS ?

I like the bed room cool (70) when I am in bed at night, All my life I have slept nude with the sheet and my favorite blanket, if the room creeps up to 73 I feel warm.

Again, do other PALS have a narrow temperature tolerance.
I was told by my PCP it maybe because I have lost so much weight.

Ann doesn’t seem to have a problem if the house gets warm… even 80 degrees.
But... outside 85 doesn't bother me, anything much above that I don't spend a lot of time outdoors. Before...
90+ didn't bother me at all.

We have a new programmable thermostat… it just doesn’t seem to want to program to that narrow. Our HAVC unit is only 3 years old, It has an outdoor temperature sensor. So… if the temp outdoor is 70 degrees and I set it at 70 (cool) it will let the temp creep up to 73 before the unit comes on and other settings too.

Our HAVC company is going to come here… like everything today the new thermostat didn’t come with a damned book. Maybe we aren’t programming it right.

To get back to the question... are other PALS so temperate sensitive?

Anyway… guess I got into rambling again.

 

[Nikki J]

I tolerate extremes less well too - perhaps not as sensitive as you but definitely different. Te heat is set higher this year and last year used the air conditioning more. The cold sensitivity could be attributed to weight and muscle loss and immobility plus more tendency to spasticity but the heat sensitivity seems to be simply my inability to tolerate physical stressors as well.

I used to be resilient. Doctors on several occasions commented on it. Not so much now

 

[lisa g]

I can't control my body temperature either which drives my husband crazy. I have a ceiling fan above me as I sit in my recliner and its a constant turn it higher or turn it lower.

I find if I'm too cold my muscles seize up and when I'm too hot I just get crabby.

Sleeping is a whole different thing while I'm kicking the quilt off, my husband is wrapped in 2 blankets. There's no happy medium.

 

[KimT]

Cold has always bothered me, but it got worse. I also am hot at night, which I never was before. I keep it at 71-72 and sometimes I find myself telling Alexa to turn it down more. Right now it's 72 indoors and I'm freezing.

I thought it was my sluggish thyroid. My body temperature is only 97 in the morning and 97.7 at night. I can tolerate warm outdoors and love the heat. The pool needs to be at least 82 for me to go in.

I was also dx with Ehlers Danlos and Mayo told me some of my symptoms come from that. I've given up trying to figure it out. I'm wearing a sweatshirt and sweatpants today. Tonight, I'll be hot again.