lgg
Active member
- Joined
- Mar 19, 2020
- Messages
- 39
- Reason
- CALS
- Diagnosis
- 11/2017
- Country
- US
- State
- TX
- City
- San Antonio
It's taken the better part of a year for my PALS to get his wheelchair to feel good. Before he could only sit in it for 30-60 minutes before getting very uncomfortable. It finally has been fixed. It has taken about the same time to make our house a smart home, meaning lights, shades, doors and TV can be operated by voice commands. PALS cannot use his arms or legs, but thankfully he can speak and swallow. That is why these adjustments were so important. He used to read a book a day and was also able to start reading on his iPad again. All of this is good news, but his breathing is deteriorating to the point where he has to wear his bi-pap mask almost all the time. What I'm saying is now that we have all systems up and working, he can hardly use anything because of the mask he needs to breathe. I just want to make his life easier and it just isn't. As I said this is a cruel disease. Thanks for letting me vent.
