Time Table For EMG Results

[CatM]

To answer your question, primary said she'd monitor my serum ammonia, especially if I develop constipation because she said ammonia is excreted through the stool. I dont know if she was confused, thinking she prescribed the med that I cant take to lower my ammonia level.
I thought ammonia is excreted through urine.

 

[lgelb]

I'm not sure if you heard "motor neuron disease" or "neuropathy." Only the latter is reported in your results. So you're in the wrong place here.

Urine yes, stool much less.

Seizures as well as muscle issues have been linked to ammonia buildup.

I don't think your primary should be managing this issue herself; I would ask for a referral to a hepatologist to confirm the approach of observation vs. further investigation as to root causes. For starters, there are further labs that can be run as noted above.

 

[CatM]

I definitely heard MND from my primary, and motor neuron disease from the neurologist.
As I stated, my serum ammonia is within range right now, and I'm still having seizues as well as muscle issues.

 

[CatM]

The neurologist in question, wasnt the one who did the EMG. It was the 2nd one I saw, who said it after examination, before I had the EMG.
I'm thinking since the EMG was so difficult to perform per the neurologists notes, she might've missed something.

 

[Nikki J]

All the comments in your report about technical difficulty relate to the nerve conduction study which 1 is a separate test and 2 has nothing to do with ALS. In spite of that they were able to see you have a polyneuropathy. You need to let this MND thing go. As stated before there is no evidence for it at all

 

[CatM]

I've been misdiagnosed before, several times and wouldnt be alive right now, had I not persisted in pursuing a correct diagnoses.
I'll agree with ya'll about one thing, I'm definitely in the wrong place.

 

[lgelb]

I agree that this thread can be closed and will do so now. Though it's always wise to participate in your own care, the EMG is the EMG and given the legal implications, if it could not be relied on, that would be so stated. But as Nikki pointed out, it was the NCS that was judged technically difficult.

PCPs aren't qualified to diagnose MND, or they'd be the ones doing it. You already identified one very misleading statement the PCP made, so I'd be PCP-shopping about now.

After any medical appointment, if you are confused later by any seemingly contradictory or not-sure-what-you-heard verbal statements, these can often be clarified via brief portal messaging.

Damage from high ammonia is cumulative over time, as with many toxins, so all or some CNS effects may persist even when the level dips lower. That's one reason why it's important to find the cause as the content I linked suggests.

All the best. You seem prepared to advocate for yourself, so I hope you do so based on the evidence in front of you.