Norah
New member
- Joined
- May 19, 2025
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- HU
Hi! I have been experiencing symptoms for the past 2.5 years. It started with dizziness and extreme general fatigue, which lasted for months and then resolved spontaneously. A year later, the symptoms recurred, this time accompanied by a mild cramping sensation and a feeling of coldness in my right foot, calf, and thigh. These symptoms also disappeared after a few months. Since then, they have been reappearing in waves, with symptom-free periods lasting weeks or months.
In February this year, I started experiencing muscle twitching in my right toe, and sometimes in my eye. These twitches spread throughout my body, although they are mainly present in my right foot and calf, but also occur in other areas such as my left buttock, upper back, and below my mouth. After exercising, I always feel it in my left buttock, lasting for hours. The sensation of coldness in my right foot sometimes disappears for a day, then returns. I have also had pain in my right heel/sole, though that has currently subsided. I occasionally feel weakness in my right leg, but there is no actual loss of strength.
I visited a neurologist who, to rule out ALS, referred me for EMG/NCS testing. After the examination, the doctor said I do not have ALS and suspected radiculopathy instead. However, I am still very worried as I have read that ALS cannot be ruled out with just one test.
Here is my EMG/NCS:
“The right peroneal nerve shows normal amplitude and conduction velocity from the EDB and TA, but no F wave can be evoked.
The left peroneal nerve shows low amplitude from the EDB (1.1 mV), conduction velocity normal, peroneal access 0.3 mV can be recorded, side difference is significant. TA muscle shows normal amplitude.
Motor conduction in the tibial nerve is normal on both sides, no significant side difference.
Sensory conduction in the sural and peroneal nerves is normal, no significant side difference.
EMG
Opinion
Axonal damage is visible in the left peroneal nerve based on the EDB (extensor digitorum brevis), likely of local origin (explaining the EDB hypotrophy — possibly due to compression or injury) or of preganglionic origin.
The tibialis anterior and vastus lateralis muscles show chronic neurogenic signs, normal sensory and motor conduction, which points to a long-standing denervation.
The clinical signs and the electrophysiological findings do not suggest ALS, ongoing motoneuron disease, or acute radiculopathy.”
I worried about
Thank you!
In February this year, I started experiencing muscle twitching in my right toe, and sometimes in my eye. These twitches spread throughout my body, although they are mainly present in my right foot and calf, but also occur in other areas such as my left buttock, upper back, and below my mouth. After exercising, I always feel it in my left buttock, lasting for hours. The sensation of coldness in my right foot sometimes disappears for a day, then returns. I have also had pain in my right heel/sole, though that has currently subsided. I occasionally feel weakness in my right leg, but there is no actual loss of strength.
I visited a neurologist who, to rule out ALS, referred me for EMG/NCS testing. After the examination, the doctor said I do not have ALS and suspected radiculopathy instead. However, I am still very worried as I have read that ALS cannot be ruled out with just one test.
Here is my EMG/NCS:
“The right peroneal nerve shows normal amplitude and conduction velocity from the EDB and TA, but no F wave can be evoked.
The left peroneal nerve shows low amplitude from the EDB (1.1 mV), conduction velocity normal, peroneal access 0.3 mV can be recorded, side difference is significant. TA muscle shows normal amplitude.
Motor conduction in the tibial nerve is normal on both sides, no significant side difference.
Sensory conduction in the sural and peroneal nerves is normal, no significant side difference.
EMG
- Right tibialis anterior: no resting activity, maximal innervation interference pattern sample, 6.6 mV, slightly increased MUAP amplitude, no polyphasia.
- Left tibialis anterior: no resting activity, maximal innervation interference pattern complete, 3.6 mV, no polyphasia.
- Right vastus lateralis: no resting activity, maximal innervation with high amplitude (11 mV), slightly reduced MUAP pair amplitude, no polyphasia.
- Left vastus lateralis: no resting activity, maximal innervation interference pattern sample, 4.3 mV MUAP amplitude, no polyphasia.
Opinion
Axonal damage is visible in the left peroneal nerve based on the EDB (extensor digitorum brevis), likely of local origin (explaining the EDB hypotrophy — possibly due to compression or injury) or of preganglionic origin.
The tibialis anterior and vastus lateralis muscles show chronic neurogenic signs, normal sensory and motor conduction, which points to a long-standing denervation.
The clinical signs and the electrophysiological findings do not suggest ALS, ongoing motoneuron disease, or acute radiculopathy.”
I worried about
- slightly increased MUAP amplitude,
- Chronic neurogen changes
Thank you!
