advocate

  1. ccjjcc

    Horrible Trach Experience (so far) for my brother

    Quick version: He got the trach this morning but they neglected to hook him up to a vent which he wanted but left him gasping for air after the procedure and terrified. Finally got the vent hooked up, now he is on sedation and sleeping; has some blood in his lungs from the procedure, that they...
    • ccjjcc
    • Thread
    • advice advocate afterward age bipap breathing brother caffeine christmas clinic family family member helpful hope life medical mnd muscle muscle weakness nursing home peg problem quality of life reading stats support surgery trach ventilator wanted weakness work
    • Replies: 21
    • Forum: General discussion about ALS/MND
  2. C

    Thank-you

    I just want to thank everyone for your support, information, and patience over the last 2 years. I first came here is Sept 2008, led here by google like many. I have had a ton of testing in the last year including a muscle biopsy that came back abnormal (but didn't show signs MND, possibly a...
    • CB1977
    • Thread
    • advocate als back biopsy cure health information mnd muscle muscle biopsy questions support testing wanted
    • Replies: 3
    • Forum: Could this be ALS?
  3. R

    If you are from Alaska or have friends in Alaska...

    ... ALS needs a friend in DC. Please consider a write-in vote for an important ALS advocate. Senator Lisa Murkowski actually wears the red wristband and a lot of commitment to the cause. She has worked quietly behind the scenes with her colleagues to make the legislative achievements for ALS...
  4. D

    my beloved bobby went to the light

    my love passed after 5 yrs with als, he was lucky he could still eat and talk, but could not more at all. i would watch over him day and night and never left his side, a week before his passing he had a dream that the light went out and he couldnt breathe he seen a bright light and was moving...
    • dottie
    • Thread
    • advocate alarm system als battery bipap heart ice lift love manual night scared support
    • Replies: 17
    • Forum: In memory of
  5. J

    A question for Wright

    Hey there Wright, First, I want to say thanks. Seems you are a Huge Contribution to this "already wonderful forum" of helpful members. I hope its ok I ask this question and that coming over the net, it doesn't come off as intrusive or condesending, Im merely asking because I dont know. Ive...
  6. R

    The Final Four, Butler, ALS

    From ALSA Florida Chapter (if you know anyone in the media, please fwd the story!):
    • rknt50a
    • Thread
    • ability advocacy advocate als als awareness alsa awareness ball brain cell cure diagnosis ice indianapolis information life media muscles paralyzed speech story
    • Replies: 7
    • Forum: Off topic everything
  7. B

    please stop cleaning...I just want to sleep

    My sister and I decided to bring mom home from the hospital, as a hospice bed hasn't opened up. Before she was admitted to the hospital I was her full time care giver with no help and or interest from any one in the family including my sister. I was working part time a part time student as well...
    • belladonna
    • Thread
    • advocate back bed cry diagnosis family friend hospice sleep sleeping pills student wanted worry
    • Replies: 8
    • Forum: Current caregivers
  8. D

    hard time focusing on other things than ALS

    I am a caregiver for my loving husband who has ALS. I am a very determined advocate for him and all his needs, but I am having difficulty doing other things. My daughters keep telling me this is all I talk about and miss regular conversations. I have been blind to this. Please help me see how I...
  9. pvale

    Update on my move......

    I don't know if I've mentioned it anywhere here, but wife and I are moving at the end of February. We are moving form Washington Mo to York NE. My oldest sister is a nurse, and is director of the HIM dept. at the hospital in York. This facility that we are moving to was the hospital's assisted...
    • pvale
    • Thread
    • advocate age assisted living back chair clinic housing medical pain shower shower chair trip update wes wheelchair
    • Replies: 30
    • Forum: General discussion about ALS/MND
  10. D

    Update from Dad's Daughter and Thank You

    Hi everyone, I am so glad I stopped back in to the support forum and, miraculously, my last post was at the top of the page! A lot of those kinds of things have been happening lately... I am sorry to tell you that my father passed on December 27 at 12:45 a.m. at age 73. It was unexpected...
    • dadsdaughter
    • Thread
    • advice advocate als back bed boyfriend breathing choking christmas confused cure dad diagnosis eating eyes family father feeding feeding tube gifts goodbye happiness kids life love muscle never give up night nurses pain reading sad sleep speech support treatment update wanted worried young
    • Replies: 14
    • Forum: In memory of
Back
Top