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neuro appointment tomorrow
Hello, again, I have another appointment tomorrow with the local neuro at a university teaching hospital. I am actually seeing the physician's assistant in the neuromuscular disease clinic as a five month follow-up visit. For those who have not read my earlier posts, I have a 9-month or so...- Moonmark
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- advice advocate ankle arm back clinic coughing emg fatigue foot info lyme lyme disease medical muscle muscle twitching normal emg pain saliva shoulder swallowing testing tests twitching weakness
- Replies: 6
- Forum: Could this be ALS?
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Martin Welsh M.D.
Some months ago someone posted a link to an article about "100 simple things" worth living for. Below is a link to a lengthier story of his life (Martin Welsh M.D.) with ALS. The Sacramento Bee, Friday, November 13, 2009, “A dying doctor savors simple joys and crosses off his final '100 things'...- bythesea
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- accessibility advocate als assisted suicide awareness decline early end of life family go away health ideas life medical reading story
- Replies: 34
- Forum: Rants and raves
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ALS National (US) Registry website
Hi, guys ... apparently there are two national registries ... or am I completely "Lost" again?" The one for vets and the one for everyone in US with ALS? Anyway ... received this notice from ALSA. In order to receive updates from ALSA about the progress of the registry and when we can begin...- BethU
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- advocacy advocate age als als registry als research alsa cdc clinical data free helpful ice information questions research secure support website
- Replies: 13
- Forum: General discussion about ALS/MND
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CDC/ATSDR Launch National ALS Registry Website
I copied and pasted this from my email from ALSA Advocacy! Woo Hoo! Today, October 8, the Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry (CDC/ATSDR) is launching the National ALS Registry website. This is the first phase of building a website...- indigosd
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- advocacy advocate age als als registry als research als research als registry alsa cdc clinical free helpful ice information questions research secure support update website
- Replies: 3
- Forum: Research and trials
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ALSTDI email
Hello everyone, the following is an email that I received from ALSTDI and I thought that I would pass along to the forum members Dear Barry, The summer is in full swing and families all over the country are taking vacations. Whether you are travelling to the beach, to the mountains to hike or...- BarryG
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- advocate als als awareness als research awareness back boston candida cell early fundraising information money questions speech therapy video website work
- Replies: 0
- Forum: Off topic everything
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The ONLY constant in life is change
Today my husband was diagnosed with Bulbar Onset ALS. You all know what we are going through....every emotion imaginable. I posted in June under the ? ALS forum and I want you to know that this forum has given me such hope and allowed me to be a strong advocate for my husband because of the...- indigosd
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- advocate als children clinic friend hope information life onset preparation second opinion support
- Replies: 18
- Forum: People with ALS (PALS)
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Currently undergoing testing to R/O ALS
I am so glad that I have found this supportive and informative site/forum. :-o Gigantic THANK YOU to all of you! My husband who just turned 56 is being tested for ALS. I noticed about 6 months ago that he was constantly clearing his throat, slight issues with drooling and that his voice...- indigosd
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- advice advocate age als back choking cure death diagnosed diagnosis emg financial friend grief headaches heart hours insurance life life insurance medical money mri muscle neurologist nose problem risk speech stress swallow symptoms testing voice wanted
- Replies: 14
- Forum: Could this be ALS?
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Latest Clinic Visit
:pI had my latest ALS clinic visit last Wednesday, May 20th. All went well. My FVC was up to 46% from 40% in January. I guess all my breathing exercising is paying off. Miss North Carolina 2008, Amanda Watson, was there at the clinic. She talked everyone and had pictures taken. Her...- gbrown
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- advocate als als awareness awareness breathing carolina clinic fvc
- Replies: 3
- Forum: People with ALS (PALS)
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My 3rd clinic visit update
Hello friends, I went to IU for my 3rd ALS clinic visit this past Tues, 2/17/09. Here is my brief update: My FVC is 77% and my NIF is 88%, my reflexes are still brisk, my strength in arms, hands, feet, legs are all still strong. My weight is stable, my speech is awful, we talked about the...- brendapals
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- advocate als clinic disability fvc ice nif peg shortness of breath speech trach update work
- Replies: 5
- Forum: People with ALS (PALS)
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Lost... Need advice
My family has always had a torrid past. My dad has been diagnosed with ALS for a little over 2 years now. He has the fast progressing kind and is completely dependant on others. Both me and my brother are away at college and my mother still lives at home with my dad. My parents have always...- dads_voice
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- advice advocate als angry brother dad diagnosed family guilt hope hospice love nurses problem quality of life stress veteran wheelchair
- Replies: 7
- Forum: Current caregivers
