anger

  1. M

    Good day gone very bad...

    Sorry I haven't posted much lately. However I have been reading every morning since most of my days start at 4am. I had a visit from my OT and Nurse, lovely ladies. First off they wanted to know if they were getting too pushy by coordinating equipment. They want to have lifts, etc...in place...
    • Micheline
    • Thread
    • anger caregiver chair cry depression equipment eye family frustrated hospice kids lifts pain power power chair problem reading stages swallow transfer board wanted wheelchair work
    • Replies: 11
    • Forum: General discussion about ALS/MND
  2. N

    Caregiver frustration, anger, guilt...

    Reader beware - this is blunt. My husband was diagnosed with bulbar onset ALS in May 08. He started slurring his speech in Mar 07 and, after ruling out stroke, doctors figured it was the progression of his Multiple Sclerosis (which he was diagnosed with in 2000). Yes, both M.S. and A.L.S...
    • newbie
    • Thread
    • als anger botox bulbar bulbar onset caregiver chair choke choking death diagnosed family fear food friend ftd guilt hope ideas insurance life medical night onset peg problem progression shower speech speech device stroke surgery voice
    • Replies: 29
    • Forum: Current caregivers
  3. F

    Ok Folks - need powerhouse advice...

    My Mum died on New Years Eve and was such a star in battling this disease. It was so rapid for her after Dx in August. The thing is that the funeral is soon and awful sibling is pulling strings - I just want to go with the flow but am being completly blanked . How do I get through this day ? Am...
  4. J

    New Here

    Just thought I would chime in and proclaim my presence. I started having problems with my legs 7 0r 8 years ago. I mentioned it to my Gyno and he sent me to the Rheumy who sent me to a Neuro. The first Neuro told me it was depression. :roll: I knew better. The second Neuro did the tests and...
    • Jocelyn
    • Thread
    • age anger ankle back clonus depression eating hours lonely money new here pain pls problems testing tests work
    • Replies: 2
    • Forum: Primary lateral sclerosis
  5. H

    trichothecene poisoning or ALS

    My Husband was told that he has ALS and had 5 years to live. Later it was discovered that he has the toxin trichothecene. After 5 rounds of plasmapheresis he was ABLE TO STAND UP AND TAKE A FEW STEPS. But(for some reason I cannot fathom) the doctors said that was NOT AN IMPROVEMENT but a "fluke...
    • Heather H.
    • Thread
    • als anger bed call for help clinic food free grief improvement life music pain paralysis power power wheelchair scooter treatments trichothecene wheelchair work
    • Replies: 35
    • Forum: General discussion about ALS/MND
  6. trying to stay positive

    Dealing with anger issues with extended family

    I am having a difficult time dealing with my anger. My DH was DX 8/07. With the exception of his sister who lives in another state, we have had absolutely no family support whatsoever. Both his adult son and his brother live an hour away. I have asked for their help in a very clear manner. The...
  7. BethU

    Als & Ftd

    Hi, all .... I know about 20% of PALS also have FTD (frontotemporal dementia), and I think I am one of them. The speech pathologist at UCLA agrees with me (or rather, I agree with her that I have it), and I have some appointments coming up to look at this. My problems started this spring with...
    • BethU
    • Thread
    • ability als als symptoms anger brain dad dementia eye falling ftd hours information keyboard muscles problems reading speech swallowing symptoms vision wanted
    • Replies: 10
    • Forum: General discussion about ALS/MND
  8. E

    Need some advice

    Hi. My name is Erin and I am new to this site, so I hope there are some caregivers out there that can relate. Thank you to those that replied to my first posting. My husband was diagnosed with ALS May of 2007 at age 35. We had a baby girl the following October and in February we moved long...
    • ebeck
    • Thread
    • advice age als anger angry breakdown caregivers diagnosed disability driving hope night
    • Replies: 19
    • Forum: Current caregivers
  9. fiddleplayer51

    Major BiPAP woes!

    We're having a terrible time getting my husband set up with BiPAP. First of all, on May 21st at our initial visit to our local ALS clinic the respiratory therapist (RT) told us which company she was selecting assuring us that the BiPAP machine would be delivered and set up the following week...
  10. jrienecker

    New to the Forums - My Story

    Hello all! The past few weeks have been incredibly hard, and as a result my mother suggested that I seek support from others who understand this terrible disease. My father was diagnosed in October of 2005. He had just turned 50 and began getting arthritis symptoms in his hands. In January 2006...
    • jrienecker
    • Thread
    • ability anger back bed bed sores boyfriend decline depression diagnosed diagnosis eyes family father feeding feeding tube grief healing heart hospice movement story support symptoms
    • Replies: 7
    • Forum: General discussion about ALS/MND
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