anger

  1. rcharlton

    Cruel Joke

    My wife is in 2nd year Med School. Her class is currently doing sessions on palliative care and terminal illnesses. The general stuff alone would cause most people in our situation to break down - but the other day her class was split up into groups of 20. Students from each group were then...
  2. L

    hostile father

    Hi. I don't know if anyone can help me with this, but it's very upsetting, and I just really need a place to air this. My mother has PBP. She's had it for 8 years now, and she still can eat soft foods and swallow okay. Her main problems are speaking (non-existent now) and chewing...
    • Lynn555
    • Thread
    • als anger angry back balance confused denial falling father health heart ice pbp problems risk support swallow walker wanted weakness
    • Replies: 10
    • Forum: Progressive bulbar palsy
  3. B

    Dad with ALS - my first post

    About 2.5 years ago my father (now 44 years old) was diagnosed with Bulbar onset ALS. He was doing really good until just a few months ago. He started falling a lot, and decided that he had to quit working. When he did this, my mother stopped working to take care of him. I was lucky enough...
    • buf68
    • Thread
    • ability advice als anger brother bulbar bulbar onset caregiver coping dad diagnosed eating falling family father feeding health health aid hope hours life onset peg scared speech stress student vent wanted
    • Replies: 6
    • Forum: Current caregivers
  4. A

    Positive Attitude

    I'm new here, just a few days. My ALS had a hard time arriving, because it was the last thing left, and because I didn't want it and hoped the docs were wrong. One of my new friends here wrote to me and said time is a luxury. I hadn't thought of that. I was wasting what time I have left. I...
  5. I

    still falling

    HI there again, had a couple of bad days last week, but I seem to be back inline. I sometimes cannot understand why I go into this deep anger, and I keep on fighting back which seems so difficult.........but somehow get back which is good for my family. My two boys now know what is going on, and...
  6. T

    4 yrs. with als

    hi eveyone, my name is ray from PA. i am new to this site. im really glad ive found this site because there are people out there that know how i am feeling and going through. ive had als symptoms beginning in sept. of 2002, probably earlier, but thats what i recall. i was 28 at the time and was...
    • tevebaugh
    • Thread
    • als als symptoms anger angry depression diagnosed friend life money neurologist research story symptoms young
    • Replies: 14
    • Forum: People with ALS (PALS)
  7. L

    ALS Communication Problems - Tips and Suggestions

    Hello, I am the wife and caregiver of a 42 yr old man with ALS, diagnosed August 2004. I thought I would offer a tip on something that works well for us, and then ask for some help/support. First, my husband has found tremendous relief from marijuana, which is legal for medical purposes here...
    • lunarruna
    • Thread
    • advice als anger angry baclofen bed canada caregiver communication diagnosed eye feeding feeding tube lift marijuana medical montana muscle pressure problems questions research saliva speech speech device support usa wheelchair
    • Replies: 14
    • Forum: Current caregivers
  8. M

    New member with new perspective on ALS/MND

    I registered with the Forum yesterday and I'm saddened by all the anger and suffering going on in people with ALS. I feel for those who see themselves as trapped in their quickly decaying bodies and feel victimized by their situation. This must be a very Hellish place to be living in. I found...
  9. D

    Looking for someone to share the grief

    I wish my mother had this site when my dad was diagnosed with ALS. She did so much on her own. It is good to share and communicate regarding this disease. My father was diagnosed in 2002 although he had signs in 2000. He passed away on 2/5/06 I am hoping to find someone who knows what I am...
  10. rcharlton

    Maintaing a foothold in the "real world"

    Maintaining a foothold in the "real world" So it's been over a year since I first noticed my symptoms and about 8 months since my first opinion and diagnosed. All things considered - I feel really good - in a lot of ways I've never felt better. I'm still working full time with little...
    • rcharlton
    • Thread
    • age als anger choking diagnosis diet eating food guilt kids life love manual muscle muscle wasting natural progression shoulder stress supplements symptoms worry
    • Replies: 5
    • Forum: General discussion about ALS/MND
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