Hi, everyone! I've been scanning some of the threads and posts and am glad to be in this group. My sister was diagonsed with ALS in August of 2007. She has experienced the losses and struggles that so many of you have had as well.
Currently, she's having lots of trouble with excessive...
I was diagnosed with PLS in 2007. In the past year, I've had big issues with my gag reflex. My throat and tongue are very sensitve and will convulse or stimulate my gag reflex very easily. I have trouble eating things like salad or spaghetti since they linger on the back of your tongue when...
.................That is the $100 question.
well,today i had an appointment due to the past several months of bulbar spasms.
said my "condition"is complexed and if baclofen is not helping with jaw/facial spasms then the last resort is botox injections but in the long run these can cause...
My boyfriend has had difficulty with speech x 2 yrs now. 4 clean EMGs. No other symptoms but spasticity in vocal cords and tongue. He just started botox injections and has been put on baclofen. Questioning PLS vs spasmonic dysphonia. Has anyone started with just speech problems? Could this still...
the first injection still works but neuro went farther up left arm and shoulder with 2nd as was starting to tighten in left bicep and shoulder.
Am feeling numb in left knee and ankle aches. Does this mean the ALS is travelling?
Regarding tube to make easier swallowing food, when should I...
My dad is getting really iritated from the issues he seems to think are related to the biPap.
Saliva being one of them, and not being able to control the drooling. I have explained that this is not really a side effect of the machine but of the disease.
He also finds that his nose is running...
had first teatment yesterday and it has already helped with spasticity in my left arm. Neurologist injected botox into bicep and loer arm. My fingers were cramping so tight it was painful to pry them open to massage them. He says will do fingers in 2 1/2-3 months.
I take 3 baclofen and on bad...
It is for pain due to atrophy in left hand. It cramps so badly it cannot be eased open w/o hellish pain. I am looking forward to no more shooting pain that travels up the left arm and shoulder and into my neck.
My neurologist sent me to the ALS Clinic in November 2011 in Vancouver BC. Canada...
I went for my yearly neuro. exam today and my doctor recommended Botox injections in my legs to treat spasticity. There are no side effects and the results last up to 4 months. I am currently on 80 mgs. of Baclofen a day and can terminate that once i'm on the injections. The treatment protocol...