Hi folks - I have made the decision to have the Baclofen pump surgery. Just two weeks from today I am having this done
After 2 years of using oral Baclofen (which has helped the spasticity a lot) - I am just plain tired of being so tired and the other side effects it causes. My neuro told me...
terrible news but not very surprising.
Rob Tyson when he did his analysis a few months back of PLM data told everyone that Dexipramipexole showed little if any efficacy. He is the same guy that reported data for NP 001 showing it to be very successful.
There are other off label and phase 2...
My husband was diagnosed with PLS 5yrs. ago. He had all the tests that they put one through and he had a brain MRI at that time. His symptoms started in his right leg with his knee kicking back when he walked. Since then he has weakness in both legs, clonus in both feet, weakness in both his...
Hello everyone, I'm new to the forum and have been using some questions about my dad. He was recently told by his doctor he thinks he has it by the sound of his voice. He started having symptoms a little over a year ago. He started to lose the dexterity in his fingers on his right hand. It just...
als
atrophy
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candida
dad
diaphragm
dps
eating
fingers
marijuana
medical
medical marijuana
muscles
phlegm
problem
questions
speech
swallowing
symptoms
test
twitching
unsure
voice
weakness
While I certainly wouldn't wish this on anyone, Richard Tisei's father had ALS... maybe someone with personal experience with this horrible disease can be a good advocate in Congress for us all.
Ironically our former governor (not Romney) Paul Cellulli, is also battling ALS.
Hello PALS. I am fairly new to this forum and first want to thank each and everyone of you for having a place to go to discuss ALS or MND's in general. I have a few symptoms I'd like to run by you if I may. FYI: I have been to my GP twice and I have a neuro appointment coming up 10/29/12.
So...
I sent the following letter to ALSA, NORD, ALSWW, ALSTDI and the MDA - hopefully they will actually attend the meeting today (10/10) and on 10/25 so that their constituents voices will be heard.
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From: Thomas J. Murphy
The FDA is hosting a public meeting on...
als?
alsa
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cell
death
depression
early
fatigue
fda
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fibromyalgia
food
foot
free
healing
health
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information
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obesity
planning
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treatment
young
I had the Diaphragm Pacing System (DPS) implanted on Wednesday April 11 and I thought I would share my experiences here for those who are interested. While researching for my own decision I soaked up everything I could find here and elsewhere on Al Gore's invention but I still wished there was...
abdomen
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wanted
Hi there, I am leaving the country in about 3 months and I humbly ask for some opinions on my symptoms.
About 3 months ago my right arm started to feel weak when I was driving, and within the next few days it had spread to the right side of my face and leg . This lasted for about a month until...
Hello all,
I am new to this forum. My mother was diagnosed with ALS in February 2012 (but has had symptoms since July 2010). She is 72. She cannot breathe on her back at all, uses BiPAP at night, walks with a walker, uses a chairlift for the stairs (PWC on order), and her speech is becoming...
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back
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