candida

  1. L

    Going with the Baclofen pump

    Hi folks - I have made the decision to have the Baclofen pump surgery. Just two weeks from today I am having this done After 2 years of using oral Baclofen (which has helped the spasticity a lot) - I am just plain tired of being so tired and the other side effects it causes. My neuro told me...
  2. E

    Biogen quits development of dexpramipexole for ALS

    terrible news but not very surprising. Rob Tyson when he did his analysis a few months back of PLM data told everyone that Dexipramipexole showed little if any efficacy. He is the same guy that reported data for NP 001 showing it to be very successful. There are other off label and phase 2...
  3. G

    Questions regarding Brain Atrophy?

    My husband was diagnosed with PLS 5yrs. ago. He had all the tests that they put one through and he had a brain MRI at that time. His symptoms started in his right leg with his knee kicking back when he walked. Since then he has weakness in both legs, clonus in both feet, weakness in both his...
  4. M

    Still unsure!

    Hello everyone, I'm new to the forum and have been using some questions about my dad. He was recently told by his doctor he thinks he has it by the sound of his voice. He started having symptoms a little over a year ago. He started to lose the dexterity in his fingers on his right hand. It just...
  5. HelenL

    Massachusetts Candidate for Congress Father had ALS

    While I certainly wouldn't wish this on anyone, Richard Tisei's father had ALS... maybe someone with personal experience with this horrible disease can be a good advocate in Congress for us all. Ironically our former governor (not Romney) Paul Cellulli, is also battling ALS.
  6. L

    Any ideas?

    Hello PALS. I am fairly new to this forum and first want to thank each and everyone of you for having a place to go to discuss ALS or MND's in general. I have a few symptoms I'd like to run by you if I may. FYI: I have been to my GP twice and I have a neuro appointment coming up 10/29/12. So...
  7. T

    Important Meetings Coming Up at the FDA ...

    I sent the following letter to ALSA, NORD, ALSWW, ALSTDI and the MDA - hopefully they will actually attend the meeting today (10/10) and on 10/25 so that their constituents voices will be heard. ================================= From: Thomas J. Murphy The FDA is hosting a public meeting on...
  8. T

    My story of the Diaphragm Pacing System Implant

    I had the Diaphragm Pacing System (DPS) implanted on Wednesday April 11 and I thought I would share my experiences here for those who are interested. While researching for my own decision I soaked up everything I could find here and elsewhere on Al Gore's invention but I still wished there was...
  9. K

    Leaving country in 3 months, thoughts on symptoms?

    Hi there, I am leaving the country in about 3 months and I humbly ask for some opinions on my symptoms. About 3 months ago my right arm started to feel weak when I was driving, and within the next few days it had spread to the right side of my face and leg . This lasted for about a month until...
  10. M

    Diaphragm Pacing System

    Hello all, I am new to this forum. My mother was diagnosed with ALS in February 2012 (but has had symptoms since July 2010). She is 72. She cannot breathe on her back at all, uses BiPAP at night, walks with a walker, uses a chairlift for the stairs (PWC on order), and her speech is becoming...
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