Since my Dad's diagnosis earlier this week, I have spent hours on the internet. There is so much information and so many new medical terms to learn.
My Dad is 78, which seems much older than most of the cases I've been reading about. I'm interested in learning about others' experience with...
The Gift of Change
In all affairs it's a healthy thing now and then to hang a question mark on
the things you have long taken for granted.
~Bertrand Russell
For years I was unhappy with most of the gifts I received for
my birthday, Christmas or other occasions. I put a lot of
thought into...
This just came in from the MDA - ALS Division: As it is encouraging for those diagnosed in the future - I am praying that the success of these trials speeds up.
Trial participants receiving the highest dose of CK-2017357 showed symptom improvement in the first stage of an ongoing phase 2 trial...
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I went for my yearly neuro. exam today and my doctor recommended Botox injections in my legs to treat spasticity. There are no side effects and the results last up to 4 months. I am currently on 80 mgs. of Baclofen a day and can terminate that once i'm on the injections. The treatment protocol...
OOPS, this is for families with kids who have a neuro muscular disease. Never mind
Educational Advocacy for MDA Families
MDA is proud to present an expert-hosted informational webinar for the MDA community on Wednesday, November 2. Please join us as Marie Ritzo and Jill Castle discuss...
I am limb onset hands/arms but I guess bulbar onset may be starting? I go to 1st ALS clinic Thur. I called neuros office this morning. Person I need to speak to not in till 1. I want to make sure I see pulmonary. I had a couple episodes like this July but thought maybe just anxiety. Did mention...
I have an appointment on Monday to be screened for the Dexpramipexole trial. I've been told--based on the medical records I have submitted and a phone conversation--that I appear to be a good candidate.
The nurse who is coordinating the study at my location seems concerned that I've chosen to...
Today i was diagnosed with ALS.The doctor advised me i am a perfect candidate for both trials.I would like to get some input.
Ceftriaxone has only 1 out of 3 placebo but is invasive becouse of taking it through IV.
Dexpramipexole is 1 to 1 but is taking orally.What would you do?
For the last few weeks I have been stalking the forums here and I am a bit nervous to be posting at all. First I am the nervous nelly wife - don't be too hard on me. ;)
Around Thanksgiving my husband J came to me about having pain, numbness, and tingling in his left arm. I figured he had done...
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