Hi all,
Long time lurker, first time poster.
I am posting here today for the first time in hopes of tuning down the fear and anxiety that can come with the suspicion of ALS.
I am not a doctor, nurse, or health professional. I will be soon, as I am a candidate for 2011 Physician Assistant's...
Something that may be of interest, as they say they want to start Clinical Trials 'in the first half of 2010'.
My (limited) understanding is that this product can help with 'skeletal muscles' which would improve mobility for PALS but if would not improve functions such as breathing etc
I hate...
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I wrote to Mr. Petzinger about getting compassionate use for this drug nd this was his response to me. Time is running out for my husband and other ALS patients.
What else can be done? Any ideas?
Dear Aleta,
Please call me Tom.
I want to thank you for your note. We receive many...
Many of you might have read this but for those who haven't .......
ALS TDI Presents Latest Data at International Symposium in Berlin
12/17/2009
This December 8-10, nearly 900 researchers, neurologists, clinicians and others involved in the care of people living with ALS gathered in Berlin...
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Hi everyone......My brother and I are the caretakers of my father (80 years old) who has been diagnosed with PLS. He is unable to walk without a walker, and even with that, he can't do much. PLS is affecting his speech and swallowing as well. I "get" the cause...upper motor neurons and the...
PITTSBURGH--(Business Wire)--
Knopp Neurosciences Inc. announced that it received Fast Track designation from
the U.S. Food and Drug Administration (FDA) for the development of KNS-760704 in
amyotrophic lateral sclerosis (ALS).
Knopp has completed the randomized, placebo-controlled portion of...
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Hello everyone, the following is an email that I received from ALSTDI and I thought that I would pass along to the forum members
Dear Barry,
The summer is in full swing and families all over the country are taking vacations. Whether you are travelling to the beach, to the mountains to hike or...
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A PALS Friend sent this to me. Interesting but I need to get more detailed information.
Ipsen and Pharnext to collaborate on Pleotherapy technology
15 June, 2009
Ipsen, a French pharmaceutical group and Pharnext, a biopharmaceutical company specialising in the development of innovative...
The Bernice Ramsay Clinical Research Fellowship supports specialized training in clinical care and research skills related to ALS. This fellowship is funded by the ALS Society of Canada and has a duration of two years, $100,000 awarded per year. The candidate will play a major role in a research...
It's official! We're getting surgery on Jim's thoracic herniated disc!
It's taken almost 7 months of FIGHTING, but they believe that his als diagnosis WAS a MISDIAGNOSIS!
His disc is rubbing on and moving his spinal cord and each movement causes what the surgeon was calling multiple mini...