conference

  1. Sequoia

    Call with Dr David Banks..FDA office of special health issues

    The Als Treat Us now steering committee has arranged for a 1 hour conference call with Dr David Bank from the FDA. If you would like to participate we have openings for up to 10 additional participants. If you want to help by listening and supporting compassionate early access to new treatments...
  2. Sequoia

    Call with Dr David Banks..FDA office of special health issues

    The Als Treat Us now steering committee has arranged for a 1 hour conference call with Dr David Bank from the FDA. If you would like to participate we have openings for up to 10 additional participants. If you want to help by listening and supporting compassionate early access to new treatments...
  3. Sequoia

    Read this from beginning to end!

    ALS Everyday Living Sharing important news, views, resources and opinions from a person living everyday with Amyotrophic Lateral Sclerosis (ALS, Lou Gehrigs Disease). Thursday, November 10, 2011 Compassionate Use Drug Availability for ALS Patients Time to wade into the water on a...
    • Sequoia
    • Thread
    • als als research caregiver clinical conference cost cure data diagnosis drugs fda financial health information life media medical money research respiratory timeline treatment treatments vision website work
    • Replies: 17
    • Forum: People with ALS (PALS)
  4. st123

    Frustrated and wondering about FTD

    My Dad was diagnosed with ALS last week and referred to an ALS clinic. They couldn't make an appointment last week because the doctor was out of town for a conference. We expected an appointment this week, but I learned this morning that the doctor's father passed away over the weekend so he...
    • st123
    • Thread
    • als als? bulbar clinic conference confusing dad diagnosed father financial frustrated ftd ice muscle muscle twitching neurologist night problems speech symptoms twitching
    • Replies: 18
    • Forum: ALS and frontotemporal dementia
  5. B

    PMA and ALS "the change"

    I have had proximal leg weakness for the past 9+ years very slow progressing. After 7-8 years I finally asked the doctor and showed lower motor neuron signs like Absent / demenished deep tendon reflex, with no Upper motor signs, and my EMG showed denervation as well as my muscle biopsy showed...
    • bryant123martha
    • Thread
    • als back biopsy bulbar clinic conference denervation diagnosed emg genetic genetic testing help! hyperreflexia muscle muscle biopsy pma progression reflex sma testing umn weakness
    • Replies: 2
    • Forum: Progressive muscular atrophy
  6. B

    Progression

    I have had proximal leg weakness for the past 9+ years. After 8 years I asked the doctor and showed lower motor neuron signs like Absent / demenished deep tendon reflex, with no Upper motor signs, and my EMG showed denervation as well as my muscle biopsy showed denervation. He diagnosed me with...
    • bryant123martha
    • Thread
    • als back biopsy bulbar clinic conference denervation diagnosed emg genetic genetic testing help! hyperreflexia muscle muscle biopsy pma progression reflex sma testing weakness
    • Replies: 7
    • Forum: Could this be ALS?
  7. arkallen

    I ♥ My Church

    We didn’t go to church the other day, which for us is rare. I remember another distant day when our van filled with our young children got hopelessly bogged between farm cottage and front gate. Forced to abandon our plans we had great fun at home that day, but there was a thwarted, sad feel to...
    • arkallen
    • Thread
    • age als book children christian conference father hours introduction iron life love medical problems reading sad sensitivity speech unknown urgent van voice wheelchairs young
    • Replies: 11
    • Forum: Off topic everything
  8. Whitsend

    International Conference

    The ALS International Conference was this week in Sydney Australia. I expect we'll be hearing about a lot of new research and statuses of ongoing research in the next few weeks.
  9. I

    Together we stand tall

    Together we stand tall. Mail text below to Knopp, biogen (every office worlwide), family and friends evererybody send those mails, because most off pals cant wait 3 years till it's for sale. Compassionate Use Drug Availability for ALS Patients Time to wade into the water on a controversial...
    • ikke
    • Thread
    • als research biogen caregiver clinical conference cost cure data diagnosis drugs family fda financial for sale health media money research respiratory sale timeline treatment treatments vision website work
    • Replies: 24
    • Forum: General discussion about ALS/MND
  10. D

    West PA Former ALS director arrested on charges of stealing $80,000

    B*stard busted today. He damn well better not get a slap on the wrist. This is ALS group my area. And they are having big conference tomorrow. Makes me feel bad asking friends to support. West PA Former ALS director arrested on charges of stealing $80,000
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