conference
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Congratulations Zenarcher!
So, just back from a very busy 3 days in DC at the ALSA Conference & Advocacy Day. Yesterday (Tues.) was the day to go to "the Hill"; there was a "Celebration of Excellence Breakfast" for all first. Some speeches & then 3 different awards are announced, one of which is the Rasmussen Advocate of...- mare
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- advocacy advocate alsa awareness back conference increase
- Replies: 19
- Forum: People with ALS (PALS)
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ALSA Advocacy Conference - New Agenda Item
In case anyone was waffling about going... this was just sent out from ALSA and tells of an interesting new session added to the conference agenda -- Jay Daugherty, Chairman of The ALS Association Board of Trustees, and Jane Gilbert, President & CEO, will host a Town Hall Meeting at this year's...- rknt50a
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- advocacy age alsa conference conversation questions vision website
- Replies: 0
- Forum: Off topic everything
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MDA newsletter - researchers and clinicians
Most of you probably see this already but in case you haven't it is informative. MDA Conference Brings Together Researchers, Clinicians, Industry | Quest Magazine Online- TedH5
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- conference
- Replies: 0
- Forum: Research and trials
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The Ides of March have come...
I'm actually feeling pretty good today, emotionally. We had "the talk" with our older daughter's teachers yesterday, and brought the room to tears. One of them said he felt helpless, which is how I feel as well. But this morning I woke up with a resolve and a five year plan, with a two year...- jaws
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- back conference cramps dad early magnesium magnesium citrate mistake muscle night progression sleep twitching weakness
- Replies: 14
- Forum: People with ALS (PALS)
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Onwards and upwards
Well here I am back in my own bed again after a shortened trip to Edmonton. It was supposed to be most of 5 days with a consultation with and ENT doc on Monday and then clinic on Wednesday (have to fit the doctor's schedules no matter how hard on the patient) but after one night in the...- BarryG
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- ability als back bed bipap clinic conference health hours ice neurologist night nose peg respiratory support trip ventilator video
- Replies: 71
- Forum: People with ALS (PALS)
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Ccsvi ? Evidence based medicine
Although the controversy surrounding CCSVI is associated with MS, people with ALS have discussed the possibility of having the treatment to ? Improve their ALS. This is the only reason that I think this discussion is important. Yesterday at the ECTRIMS conference that I am attending in...- Alyoop
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- als autoimmune brain clinical clinical trial conference heart hope improvement information medicine money problems research risk story symptoms treatment treatments trial usa
- Replies: 0
- Forum: Primary lateral sclerosis
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Locomotion
The distant thrum of the diesel-electric engine. The sway and rattle of the carriage. The endlessly progressing vista … now coastal grazing land, greened by our best season in a decade … now a banking river … now a stand of paperbark, ringing a tannin-stained lagoon. Clanging bells of a level...- arkallen
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- ability angry conference death fear friend grace heart hours life manual night questions reading robert travel unknown vision wheelchair
- Replies: 3
- Forum: Off topic everything
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Chronic cerebrospinal venous insufficiency (CCSVI)
Although the controversy surrounding CCSVI is associated with MS, people with ALS have discussed the possibility of having the treatment to ? Improve their ALS. This is the only reason that I think this discussion is important. Yesterday at the ECTRIMS conference that I am attending in...- Alyoop
- Thread
- als autoimmune brain clinical clinical trial conference heart hope medicine money problems research risk symptoms treatment treatments trial usa
- Replies: 2
- Forum: General discussion about ALS/MND
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Back from the FTD Conference
This past week Jim's Aunt Mary and I attended the 7th International Conference on FTD in Indianapolis, IN. Though the actual caregiver portion of the conference was only one day - it kept my whole week full! To start at square one: Monday was probably the worst day Jim had yet. He was just very...- shelleynshaggy
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- ability age back bed book brain brother canada caregiver children conference diagnosed documents family fell free ftd ice indianapolis kids motor neuron disease neurologist nih problems support trip website women young
- Replies: 2
- Forum: ALS and frontotemporal dementia
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Frustrated Long Distance Nursing Home Issues Etc
I guess I need to let off some steam or something, and/or ask advice. First, I am long distance, 2000 miles away from my brother, who just got his final EMG a couple of weeks ago and he is diagnosed. He is alone in a large city. In a nursing home. I've tossed around moving there versus him...- ccjjcc
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- advice back biopsy brother cell conference dementia diagnosed emg family frustrated issues medical money nursing home power problem shower wheelchair worried
- Replies: 10
- Forum: General discussion about ALS/MND
