disability

  1. SLAUGHTER1555

    At A Crossroad I Have Questions

    Hi to everyone its been awhile since i posted on here lots of changes with my PALS. So last time i was here i talked about how the his kids kind of attacked him about life insurance policy. Well time has passed and i am no longer angry but i still dont trust them. Since his diagnosis in May 2015...
    • SLAUGHTER1555
    • Thread
    • angry bed chair cry diagnosis disability finances food insurance kids life life insurance lift medicare nursing home questions sleep speech transfer work
    • Replies: 35
    • Forum: Current caregivers
  2. swalker

    We lost our beloved cat

    I am not sure where to post this. Moderators, please move this as you see fit. We are cat and dog lovers. Just about since we were married 30 years ago, we have had a series of siamese cats. Pharaoh was a pure-bred, lilac point siamese. He was stunningly beautiful. He was also the dumbest...
    • swalker
    • Thread
    • brain breathing cats diagnosed diagnosis diaphragm disability last days muscles problems sleep
    • Replies: 15
    • Forum: Off topic everything
  3. ShiftKicker

    Canadian CPP Disability

    Anyone with PLS who is Canadian? Anyone who has successfully applied for and received CPP Disability? Any pointers are gratefully received. Apparently I'm entitled. And officially disabled, according to my doctors. Hard to confront. Mostly because the paperwork is unbelievably complicated. Many...
  4. W

    Time to join the group

    I've been putting off posting this as long as I could, just holding on to any hope of a misdiagnosis but after my third clinic visit yesterday, it's time to completely accept the fact that I have ALS. I've been lurking on the forums since my original post on DIHALS in May when I first heard...
    • wshealey
    • Thread
    • als clinic dihals disability hope misdiagnosis neurologist pls possible als sad support trilogy
    • Replies: 14
    • Forum: Newly diagnosed
  5. KatieNBoyd

    Living in MT New to group.

    Hi there, we were just given the diagnosis finally this week though it is something we already knew. The EMG just made it more definitive. My husband is 59. He has been in construction all of his life building homes, cabinets and furniture now he can't open a water bottle without help. He...
    • KatieNBoyd
    • Thread
    • als clothes diagnosis disability eating emg family information life montana muscles twitching work
    • Replies: 16
    • Forum: Current caregivers
  6. lgelb

    Resource Second opinions and first clinic visits

    Do you really have ALS? A diagnosis of ALS or any other motor neuron disease (PLS, PMA, PBP, MMN) is made “by exclusion” (no higher probability presents itself) and by published criteria, most critically symptoms and muscle/nerve tests. Doctors may legitimately differ on whether you have...
    • lgelb
    • Thread
    • als als clinics alsa atrophy bipap caregivers dementia diagnose diagnosis disability exercise eyes free hospice hours lung capacity medical mmn mobility mucus orthosis power research second opinion sleep speech suction symptoms tests weakness wheelchair wrong
    • Replies: 1
    • Forum: Resources
  7. A

    Vets and home health assistance

    A couple of months ago we finally got set up for home health assistance. The VA pays for 10 hours a week, and we have it set up 2 hours a day Monday thru Friday. In addition to that, we've been paying for a couple of folks for a total of forty hours. All of this is to make sure someone in...
    • Autotelic
    • Thread
    • disability health hours increase lead nursing home respite trip work
    • Replies: 13
    • Forum: Current caregivers
  8. F

    Tough clinic visit today

    Today mom had her clinic visit. Her fvc numbers were really low. She tested at 55 two months ago, and before that she had maintained a constant 60 since October of 2014. Today she tested at 17. I was unprepared to hear such a low number since she doesn't outwardly show such marked decline. When...
    • FamilialALS?
    • Thread
    • als anxiety breathing clinic decline disability family free fvc genetic genetic testing headaches health hearing hospice insurance introduction life life insurance long term care insurance neurologist nurses sod1 testing work
    • Replies: 12
    • Forum: General discussion about ALS/MND
  9. B

    Those with Private Ins and Medicare

    For those of you who have private insurance as primary and Medicare as secondary, make sure to read your benefits book closely. I have BCBS through my wife's work and just found out today that they will not cover a speech generating device. Buried on page 123 of a 427 page document, it states...
  10. Green Queen

    It's coming...or going

    G'day all. I've been neglecting you all...sorry. As we all know, being down about things can be tough to come back from. Wayne and I went to Perth recently and saw my Perth Neuro...I seem to have a collection! Anyway, I only wanted to see him so I was armed to the hilt with information ready...
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