disability

  1. K

    how do I get help ????

    Hi............Sorry. haven't been able to be here for awhile I spent 7 day's in hospital with heart failure then had to return to the hospital 3 time's after I was discharged... Anyway's had my husband a apt @ U of U clinic but they called to confirm insurance and told me that our insurance was...
  2. B

    I just need to get this out

    I just feel I need to get some of this toxic energy out of me and this is the right place to do it with the right audience. These are some of the thoughts I get on the worst of days. 1) My situation. Just before diagnosis I went through a relationship break-up. So I have no wife, no kids, and...
    • bear1973
    • Thread
    • abuse als back depression diagnosed diagnosis disability euthanasia family family member father helpful kids life paralyzed
    • Replies: 12
    • Forum: Rants and raves
  3. gooseberry

    social security

    Apparently getting social security isnt a given for the spouse when the pals dies. It is age dependent. My son who has several disabilities, is being evaluated under the disability area as well as, the survivors benefits. We had been told previously he wouldnt qualify because of my earnings...
  4. K

    Newly Diagnosed (Bulbar Onset)

    Hi all, I'm Katy As much as I love new groups, I really wish this is one I didn't have to become a member of. No offense to all you great people. After about a year or so of slurred speech and my voice being reduced to a hoarse whisper, my GP sending me to a neurologist and months of testing...
    • Katy Sunshine
    • Thread
    • ability als back bulbar bulbar onset choking cramping decline disability emg hours muscle neurologist newly diagnosed onset problem rilutek slurred speech speech support swallow symptoms tests tremor vision wheelchair
    • Replies: 34
    • Forum: Newly diagnosed
  5. maryhahnward

    Lifespan Respite Care Act

    Respite care is one way to take care of ourselves as caregivers. It gives us a little relief so we can do things like visit with friends and family, go shopping, or go sit somewhere and do nothing if that is what we choose. It is not specific for caregivers of a PALS, but we can benefit, as well...
  6. T

    Qualifying for Disability

    Good morning, I am new to this group; and haven't spent a ton of time because the reading makes me want to hide! I was diagnosed with bulbar onset ALS in June of 2015. At the time I was dealing with slurred speech and swallowing probkems. Now, 8 months later, I cannot speak, soft foods only...
    • TheBean
    • Thread
    • als alsa anxiety back bulbar bulbar onset depression diagnosed disability insomnia onset reading slurred speech social security speech swallowing symptoms weakness
    • Replies: 7
    • Forum: General discussion about ALS/MND
  7. F

    Newly diagnosed and devasted

    Hi everyone, I am newly diagnosed (12-29-15) with ALS. Since my dx, I've been devastated. My mom passed away in August and I was in a pretty deep depression over that when I got my dx a couple month later. I feel like I was hit over the head with a sledgehammer, and that wasn't enough so I...
    • Firefly
    • Thread
    • als arm breathing dementia depression disability dry mouth emg heart lyme lyme disease memorial mri myasthenia gravis neurologist newly diagnosed sad second opinion speech story support swallowing test weakness wrong
    • Replies: 13
    • Forum: Newly diagnosed
  8. maryhahnward

    Veterans with ALS Caregivers info...

    Caregivers of veterans with ALS are welcome to join a community of military/veteran caregivers. The Elizabeth Dole Foundation was created to assist and support military/veteran caregivers. "Our nation’s military caregivers need and deserve robust, effective support in light of the mental...
  9. CrewsCT

    Introducing Myself

    Hello everyone. My name is Curtis. I am a 45 year old husband and father. I was diagnosed just before Christmas with ALS, though I had strongly suspected that I had it for a few months prior. I am on active duty in the Navy and am now going through a medical board which will medically retire...
    • CrewsCT
    • Thread
    • advice als christmas cramping diagnosed diagnosis diet disability family father hope medical muscle problems progression speech supplements support swallowing
    • Replies: 18
    • Forum: Newly diagnosed
  10. scaredwifetx

    Medicare choices

    Hello, I have been paying Cobra since I left my previous company and started at my new company. I needed to keep Steve insured and my insurance was very good with no deductibles. His disability was finally approved today and he now has Medicare A and B. I am having a hard time figuring out...
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