husband

  1. AKY10

    Lost my husband on 12/15/21

    Hello, I had previously posted on this site about the Liko sling and portable suction devices. I am sad to say my husband lost his battle with ALS in December. As I mentioned previously it was a fast progression. We are heartbroken and miss him so. He handled his diagnosis and all that he...
  2. Zephyr

    Husband diagnosed today..

    I hope I'm not violating any rules here, I am not thinking clearly, as my husband was just diagnosed by a specialist today. He took the news better than I did, I have been crying most of the day. He has bulbar onset, can no longer speak that is understandable, is bothered by drooling, and has...
  3. K

    My husband is dying....

    My husband and I got married 15 months ago. He was diagnosed with PBP 4 months later. It's been a nightmare. I'm depressed, even suicidal at times as I think about having to go on without him, having to start over in life, being both a newlywed & a widow at the same time. His FVC measured at...
  4. B

    Lost my husband on11/29/2021

    My husband Roy passed away at home under hospice care after a botched PEG tube replàcement required emergency surgery. The PEG was placed outside the stomach causing him great pain.He aspirated and developed sepsis. He did not have enough strength to fight off such a trauma. We brought him home...
  5. A

    Husband sick but no answers

    Previous thread My husband (46) is having weakness, cognitive problems, balance problems, and some other weird symptoms. These have been ongoing for about a year but he has made a significant decline in the last six months. In June he was sent home from work because he had hand weakness that...
  6. U

    Concerned husband

    Hi everyone, Coming here to hopefully provide some comfort to my wife who has been going through a tough time with symptoms she feels are in line with ALS. This all started with some muscle twitching followed but some internet research which didn’t help. He twitches we’re in different places...
  7. L

    My husband passed away 6/21/21

    My husband, Wynn Grendahl, passed away on June 21 on his own terms. He was wearing his Trilogy Evo 24/7 and could’ve be without it for only a few seconds. He said it was time to remove his mask. We contacted his hospice nurse to make him comfortable enough so the mask could be removed with no...
  8. E

    Worried about husband is rediagnosis possible after many years

    Hello, I am worried about my husband and have been aware of this site for many years. He started having symptoms about 8 years ago. Both UMN (reflexes, absense of reflexes, I think even positive toe reflex) and also LMN symptoms in calf (2 muscles tested positive in EMG in each leg.) Things got...
  9. L

    Lost my husband on 5/10/21

    Hi folks. My beloved husband, Roger, lost his battle with ALS on May 10th. He was cremated on May 14th, which was the ONE YEAR anniversary of receiving the diagnosis. This disease is just about the worst thing I can imagine. And I'm still in a bit of disbelief that he's gone. I'm...
  10. F

    Husband just diagnosed

    Hi everyone, My husband was diagnosed with ALS two months ago today, on February 18, 2021. We are based in Switzerland (French-speaking side) but we both lived in the US (Los Angeles) for a significant amount of time, 20+ years combined. I don’t have a particular question - actually I have so...
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