husband

  1. N

    Husband passed away January 4, 2021

    Hi. It’s been several years since I’ve posted here. My loving husband, Darin, passed away on January 4, 2021 at the age of 40. He battled ALS for 4 years and 8 months. Our children are now almost 6 and 10.
  2. W

    my husband was just diagnosed

    my husband was just diagnosed with als this past week but for the past year he has not been able to eat nothing but yogurt cottage cheese and candy i dont kmow anything really about this can anyone help me with what i can fix him to eat he has lost 60 lbs this past year he is just starting to...
  3. J

    My husband is recently diagnosed--seconding opinion from Columbia Hospital confirming ALS

    He is 72 and seemingly in good health (ran marathons, biked daily) until 20 months ago when he unexpectedly had bypass surgery after failing a stress test. He never quite recovered from the surgery...just continued to get weaker. We attributed to the surgery and COVID with gyms closed. When...
  4. GeorgiaPeach48

    Husband hates BPAP

    Hello! This my first post in this forum. My husband was diagnosed with ALS in September of 2020, but his first symptom appeared 6 years ago. His case is atypical in that it's Bulbar Onset, but doesn't seem to be progressing at a rapid pace. Six years ago I noticed that he was using a straw for...
  5. R

    Husband is convinced ALS

    Hi my husband has had twitching that has been going on now for around 4 months it is mainly in his left leg but it changes positions, he has had a nerve conduction study and mri on brain and spine and all came back clear he has googled a lot and can’t stop twitching, do you think this is...
  6. L

    Gadgets for getting hoyer sling behind husband's back in bed

    Hi everyone. I am looking for advice on what sort of gadget to use for getting the hoyer sling behind my husband's back when he's in bed. (I searched the forum, but I may not be using correct search terms.) My husband is now in hospice and this cruel disease is progressing so fast. (He was...
  7. A

    ARCG’s husband

    My courageous husband passed away in his sleep this weekend. Even though it was a long hard battle, I am not ready, I miss him so. I am lost. Thank you all for your support over the years, Much of the information I learned here helped me provide him with best possible care.❤️
  8. I

    My husband died from ALS and now I’m afraid I have it

    Hi. I was on here in 2016/2017 asking for advice about my husband’s symptoms. It turns out he did have ALS. He passed away June 2018. He was 47. I know WAY more about this disease than I ever wanted to. I’m so sorry for everything you’re all dealing with. I completely understand. But now, I’m...
  9. cbiedron

    Husband was just diagnosed...I'm so worried and not sure how to help.

    My husband was diagnosed on Monday and getting a second opinion next week. All his symptoms point to bulbar onset (slurred speech, difficulty swallowing, coughing all the time). Sometimes he will cough for a long time and I'm afraid he cannot breathe or will choke on food. I'm terrified. Is...
  10. S

    Husband's refusal to use NIV - ideas?

    My husband has rapidly progressing bulbar onset ALS. He should really be using his NIV now as he has trouble breathing at rest. His current ALS FRS R score is 7. He gets panic attacks when he uses it ,despite lorazepam.The max he can stand to do is an hour a day. What can we expect in the next...
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