lonely
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Time Does Not Ease One's Pain Or Lonliness...
Hard to believe we said goodbye 2 months ago today... even harder to believe that you are gone. I miss you laughing at how I reacted over finding a spider, or by you sneaking up on me. I miss walking to classes with you and taking classes with you. I miss your gentleness, your patience. I...- Jason's Dream
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- father food goodbye happiness heart holiday life lonely night pain planning shoulder wanted
- Replies: 16
- Forum: In memory of
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L
Not looking for answers, just common ground.
Hello all, i am a long time reader and a long term worrier. I feel part of the ALS community as a lost an uncle to it 5 years ago. I am active in the Bruce Edwards foundation and do yearly ALS walks with my family. I am not posting asking for opinions or answers to calm me. I just want some...- LifesWorthLiving
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- als anxiety arm awareness clinical diagnosis family health life lonely medical neurologist scared speech stress support symptoms testing weakness work worry
- Replies: 28
- Forum: Could this be ALS?
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?Happy New Year!
Happiness would surely be the most common hope I express for everyone I know. I say it all the time. Happy Birthday, Happy Anniversary, Happy Travelling, Happy Christmas, have a Happy-rest-of-the-day, and on it goes. And yet… and yet… happiness is not something in which I place much confidence...- arkallen
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- age christmas conversation early eyes family happiness happy anniversary hope life lonely love night nose oil questions risk running work wrong
- Replies: 0
- Forum: Off topic everything
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I am Done
I wanted to reach out to friends here and let them know I might not make it through the night because of my own doing..Yes I have thought about my kids, I am so emotionally unstable it has had very negative impacts on them,,,I run my house alone and work a job that is too stressfull but all I...- Sammantha
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- brother children family insurance kids lonely night wanted work worried
- Replies: 83
- Forum: General discussion about ALS/MND
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Sooo Frustrated!
I'm not even sure if this is the right place to put this thread but I am just soo frustrated right now, I need to just vent! Just to give you a little background: I'm 23 & my father was diagnosed with ALS last month but has had it for about or almost a year. (It was something we suspected but...- NiKky
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- als book breathing children christmas dad death depressed diagnosed early eye father fear feeding feeding tube frustrated health hospice hours information lonely mucus neck brace night nurses pain problem questions research scared stress suction surgery vent voice wanted work worried worries worry
- Replies: 25
- Forum: Current caregivers
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Flying Blind
At 11.25pm a day of great richness is about to close. The date, May 20th, is a memorable anniversary, although not one I cherish. The twentieth of May in 2009 was the day on which the Neurologist said I had Motor Neurone Disease; and on the twentieth of each month since I have earnestly prayed...- arkallen
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- advice back chair confusing death diagnosis driving early eating exercise foot life lonely love nausea neurologist no diagnosis power power chair reading story unknown voice walker young
- Replies: 9
- Forum: Off topic everything
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Haiku Challenge
I've noticed my posts and emails are getting shorter and starting to read like Haiku. Three lines, 5 syll, 7 syll, 5 syll. Now, I have no skill in this area, but there are many talented people on this forum. Here's a couple attempts from me to get the ball rolling. My fat dog snoring, I am not...- tomby
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- ball challeng lonely
- Replies: 21
- Forum: Off topic everything
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Stohy
(I tried posting this in my blog area - but I don't think we all venture into the blogs much. Hope it's OK to stick it here. And I miss-typed the title!)) Of more than a few petrifying moments in life to date, there would be few that match attending church on the last two Sunday mornings...- arkallen
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- ability age back balance book burning chair christmas conversation death equipment fear foot hip life lonely music pain power power chair running shoulder van young
- Replies: 6
- Forum: Off topic everything
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My Letter to ALS
Hello All. I have been dealing with the devastating effects of ALS for 19 years now. I would like to share this letter that I recently wrote to ALS itself. Dear ALS, I just wanted to drop you a few lines to tell you how I honestly feel about you. I despise you because you almost destroyed my...- newday
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- ability als back bedridden children death early family go away heart hope hospice life lonely love muscles newday paralyzed sad scared wanted young
- Replies: 13
- Forum: People with ALS (PALS)
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Tremors.. IS this normal for BFS?
Hello, I am new in this forum.. You will have to forgive my english but it is not my mother language. I have been reading the posts for a long time. I must be honest I didnt even knew about the existence of ALS until i went to the doctor to check my fasciculations widespread (Initially I...- Negrita
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- als bfs clean emg emg fasciculations info lonely pain reading tremor vent
- Replies: 7
- Forum: Could this be ALS?
