lonely

  1. T

    My Mom wants 'out'

    My mom is 86 with bulbar onset als. She is still strong, uses a rolling walker. Can't speak, can't eat (has peg), and gets really tired easily. We have an appt. with the pulmonologist next month to be evaluated for the bipap, as I think she could definitely benefit from that at this point. I...
    • TGB1
    • Thread
    • als bipap bulbar bulbar onset depressed diagnosed family feeding lonely onset peg speech swallowing swallowing issues walker
    • Replies: 6
    • Forum: Current caregivers
  2. F

    hand atrophy and ALS

    I have had twitches for two months now.. I am freakd out.. could not sleep lately I barely get few hours a day. I have noticed also a smaller muscle in my left had. I feel it is weak. doctor say I do not have ALS. I visited 3 doctors already. I do not know if this atrophy is there since before...
    • flymisk
    • Thread
    • als atrophy do i have als emg fear hours life lonely muscle scared sleep taste tests twitches
    • Replies: 4
    • Forum: Could this be ALS?
  3. E

    How do you move forward

    I cared for my husband for 2 1/2 years and he passed away from ALS on December 14th 2012. I still wake up to do things for him, it is like still being in that mode. How do you move forward? The pain of missing him, the children away at school and trying to get back into the working world. It...
  4. U

    Am I just too sensitive?

    My wife seems so cruel to me. She always does what I call a drive by. She asks a question as she is walking by and keeps walking and as I answer she just yells from the other room mumble mumble mumble. It feels so mean. If I even ask for anything I get the same response. I asked 1 thing in a...
    • Uptown
    • Thread
    • abuse adjustable caregiver heart lonely muscles please help please help me rant wrong
    • Replies: 17
    • Forum: People with ALS (PALS)
  5. Lolita

    looking for friends

    Hello everyone...I'm new. Would like to invite anyone interested in friending me. I have uploaded some pics this morning of myself and my family..I'm 30 and mom of a 3 and 6 year old. I have been given a possible A L S d i a g n o s i s..told by another ne ur o mu sc ul ar specialist, that I...
  6. C

    Feeling alone and lonely

    I haven't written anything on here for awhile but I do read articles almost everyday. Jan 2013 will be one year that I was diagnosed. As of right now i am still mobile, but I am starting to see some slight weakness in right hand. My biggest problem has and still is the man that I live with. He...
    • chrisroski
    • Thread
    • age christmas clinic cry diagnosed ideas kids life lonely love problem speech test weakness
    • Replies: 19
    • Forum: Current caregivers
  7. Sammantha

    Ready to Explode! (disability coverage issues)

    Okkkkk, I have two fighting teens an unhappy lonely marriage and a difficult process of disability! My company disability approved long term but everytime they request a test they dont pay and my big fancy hospital takes two months to get the paperwork to them. I get notices that say you have...
  8. Poet Chistopher Robin

    update from chris the poet

    I am terminally ill and dying I have COPD meaning my lungs are gone, also MND motor neurone disease which is killing me daily plus, a small cancer growth in my left back plus a right front hernia plus a broken right foot After celebrating 35 years of marriage two weeks ago my wife has thrown me...
  9. arkallen

    My Ugly Divorce

    I’m rattled. There’s no skirting the issue: my keyboard’s betrayal is shaking the core of my being. I just love typing, or I did; and for many months it has been a lifeline of communication. But too suddenly it's becoming a thing of the past. For a long time now I have been rolling along...
    • arkallen
    • Thread
    • back balance betrayal communication divorce finger gifts hope lonely love power power wheelchair sad shaking software unknown wheelchair work
    • Replies: 14
    • Forum: Off topic everything
  10. L

    New member

    Hi everyone. I'm new to this site but unfortunately I'm not new to ALS. My father is currently battling the disease and last year I lost a friend to it as well. In an attempt to work on my own grief, I've started a blog all about my journey during my father's battle. I know that ALS sometimes...
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