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  1. MaxEidswick

    Nancy Frates note

    Nancy Frates with Pete Frates and 4 others Hi Everyone - Just returning from ALSA meeting in Tampa. Briefly here is my update: 1. I am overwhelmed to have met all the staff who work in National and all the Chapters around the US. Most of them have been on the horrific ALS journey with a loved...
    • MaxEidswick
    • Thread
    • age alsa conference cure data drugs eyes finger heart hope media pain petition possible a problems support therapy treatment update voice work wrong
    • Replies: 2
    • Forum: People with ALS (PALS)
  2. R

    Scared to death :(

    Long story short, my breathing started to become difficult when lying down, but was only getting really bad on some nights, and was mildly present in the daytime. I started to get concerned that something worse was going on so immediately got tested for Hiv, Syphilis (VDRL), thyroid panel, etc...
    • Restless
    • Thread
    • ache acne anxiety back biopsy breathing breathing issues christmas death decline dementia early fatigue fell finger go away hiv ideas improvement insurance lyme magnesium meds muscle muscle wasting neurologist oxygen possible a story swallowing symptoms tests vision vitamin d wanted weakness weight loss wheelchair
    • Replies: 6
    • Forum: Could this be ALS?
  3. S

    We survived our clinic visit

    It was a long day but we survived our first and most probably last ALS clinic visit at the VA in Charleston. We met some very nice and knowledgeable doctors and nurses and recieved a ton of great information. We have help on the way to lighten the load a little more. Now for the bad news... They...
  4. F

    Update on Widespread Fasciculation and EMG

    On 9/9 after an EMG where he found "Mild Denervation" our first Neuro diagnosed my husband with ALS (No clinical Weakness, no Hyper-reflexivity). We were sent to an ALS "Expert" Neurologist (A Dr. Barkhaus at Froedtert Hospital in Milwaukee, WI). He did an exam and found no clinical weakness...
    • findinghope
    • Thread
    • advice als alsa bfs clinical denervation diagnosed diagnosis dirty emg early emg fasciculation hope life muscle neurologist possible a questions scared story stress support symptoms twitching update weakness
    • Replies: 19
    • Forum: Could this be ALS?
  5. N

    Need Your Help and insight! please, please!

    I am sure that this is a repeat post, possible questions have been answered elsewhere but please, I beg of you to help me. I am pregnant and not dealing with this possible diagnosis very well. I would like to give my background and would appreciate your feedback, help and experience to guide...
    • NikkyH
    • Thread
    • ability anxiety biopsy book children claw clothes cry crying desperation diagnosis eye fatigue fingers health hope is this als kids lift love meds muscle muscle twitches pain possible a questions reading ring finger scared stress testing twitches weakness work wrist
    • Replies: 17
    • Forum: Could this be ALS?
  6. S

    12/3/13 The day dad was diagnosed

    Over the last 10-15 years dad has faced many health issues such as severe arthrihtis problems, 2 disks removed in the lower back with fusion, carpral tunnel surgery on both wrists, and rotator cuff surgery to name a few. Within the last 3 years or so there have been more issues. He started...
    • Snowman78
    • Thread
    • arm back bipap breathing breathing problems clinic dad decline diagnose diagnosed father feeding tube health heart mri neurologist neuromuscular disorder night oxygen physical therapy possible a problems second opinion stroke surgery swallowing tests therapy wanted weakness wrists
    • Replies: 10
    • Forum: Newly diagnosed
  7. M

    Help with a couple of questions.

    Hi, This is my second post. I have been waiting for word back on my emg test done a by a neuro muscular neurologist. I have MS and my MS Dr. sent me to have a neuromuscular evaluation by this other neurologist. Well she did not do the evaluation, just the emg/ncv tests. My MS neurologist called...
    • MikeJ
    • Thread
    • advice als atrophy back clinic confused emg falling family fasciculations insertion muscle neurologist possible a problem problems questions reading test tests weakness wrong
    • Replies: 8
    • Forum: General discussion about ALS/MND
  8. Cricket

    Throat Tickle

    Now and again, I get a tickling sensation in my throat when I talk too much. I can usually get rid of the itch by drinking cold water or by doing "a-hum".* Recently, if I can't control the tickle, it feels like my throat muscles contract for just a couple of seconds and I can't seem to get any...
  9. K

    Tips, Help and Insights Appreciated

    Hi, My husband started to develop symptoms Thanksgiving Day 2009. Little did I realize the journey we were about to begin. He had cut his hand the previous weekend and was on pain pills. So the slurring of speech – of course, it was the side effect of the pain pills. But the speech got...
    • K Lynne T
    • Thread
    • anger bipap death depression diagnosed grief heart love mad night pain possible a problems questions scared speech story symptoms tests voice work
    • Replies: 3
    • Forum: New members
  10. J

    Dealing with ALS through humor

    I was finally diagnosed with ALS two weeks ago after being assured by every neurologist and neurosurgeon I consulted over a 10 week period, that it wasn't ALS. EMG this week confirmed the previous observed diagnosis. I am by nature an inveterate optimist, which has enabled to deal with a long...
    • junkie
    • Thread
    • als arm blog bulbar diabetes diagnosed diagnosis emg medical neurologist possible a pressure problems symptoms
    • Replies: 5
    • Forum: General discussion about ALS/MND
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