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  1. C

    twitching in chest

    Since Dec 20th.. I have been having twitching/ vibration sensations left side of pectoral muscle area... it comes for like 2 4 seconds and stops... since the 20 th of Dec. it has happened about 8 days for those seconds overall and today it has been going on and off every other hour.. Is...
  2. Lolita

    looking for friends

    Hello everyone...I'm new. Would like to invite anyone interested in friending me. I have uploaded some pics this morning of myself and my family..I'm 30 and mom of a 3 and 6 year old. I have been given a possible A L S d i a g n o s i s..told by another ne ur o mu sc ul ar specialist, that I...
  3. sadiemae

    BFS or ALS? A must read if you twitch

    Or if you believe you have weakness I was just surfing the internet and came across a great article on the differences between ALS and BFS(Benign Fasticulation Syndrome) What is the difference between a BFS twitch and an ALS twitch? There is a BIG difference between the two. ALS twitches are...
  4. K

    You Can Fight This Thing

    I am a 64 years old man (do't let the name "Kim" fool you). I was diagnosed with ALS after over a year of tests, treatments, and bad guesses, which included open heart surgery, and diagnosis of Asthma, and possible Emphazema. The official ALS diagnosis came with the explanation that there was...
  5. O

    Anyone out there with PLS on a Bi-Pap?

    At my latest appointment, I apparently failed the spirometer test when flat on my back, so the neuro talked to me about a Bi-Pap. I'm not aware that I have breathing difficulty. I'm a real klutz when it comes to trying to use the spirometer. I'm unable to make a seal on the thing, as whatever...
  6. R

    I think FALS is knocking at my door.

    I am very thankful I found this forum and have been reading threads and found them very helpful. I thinks it's time to contibute and start talking with people about ALS even if it's in a forum. I am 36 year old male that has had many generations of our family die from ALS. My father died some...
  7. W

    Physio....thank you

    Just wanted to thank you all for the heads up in regards to physio. I went yesterday and while it is more unusual in these parts, they know of someone in the area that does do water physio. They are going to try in the next week or so to get the number for me. All along I have always done yoga...
  8. Poet Chistopher Robin

    How I found out I had this terrible disease

    It started with me as a teen back in the 1970’s I broke my right index knuckle several times over during the years. Each winter my right hand was no good in the cold weather the finger was in effect dead in 2009 the knuckle got so bad that I could no longer even write or sign my name and had...
  9. A

    Completeley confused and deppressed !

    This is the first time i have written here, my mom was diagnosed in september 2011, My mom is a very independent woman, and to today i can not find the courage to confront her with her diagnose, she does not know what this disease is just like i didnt either, but the more i look and find out and...
  10. H

    Heartbroken in NM

    First of all, let me say that I'm so sorry for all of the people here and elsewhere stricken by this horrible ailment. No one deserves the kind of suffering that ALS delivers indiscriminately. My compassion for each of you is even more bolstered by my personal experience. My beautiful wife of...
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