slow progression

  1. S

    Yet another person afraid of ALS

    Hi, I'm a 26-year-old male, 6'1", 180 lbs., who a month and a half ago noticed a twitch on my left bicep and tricep. I thought it was odd since of course I had twitches before but it was frequent enough to notice. From then to now I've noticed a slow progression of twitching - the next was my...
  2. D

    is it possible...?

    Hey guys I have a question on my mind that we are having a hard time with. As you know my dad was diagnosed March 7, 2008 with the Slow Progression ALS.... His sympotoms arent showing signs of SLOW progression...is it possible that he was mis-diagnosed and he has some type of the fast...
  3. happy

    Really, Parsonage Turner?

    I was wondering if anyone knows about Parsonage Turner Syndrom? My neurologist diagnosed me with it. My EMG was unremarkable, CSF fluid normal, blood normal. However in the last month along with the atrophy I was having in my hand I have noticed increased twitching mostly on same side as atrophy...
  4. D

    How to face it?

    Hey everyone! Last time I posted a thread, I gave you all an update on my dad. He was offically diagnosed with the Slow Progression ALS. Which blows big time. I have come to terms that he has this disease but Im having a very hard time accepting it. Im having a hard time dealing with it. My...
  5. W

    Not sure how to help.....

    My husband's uncle was diagnosed with ALS in Nov. of '07. We thought it would be a slow progression, but unfortunately that does not seem to be the case. He was recently fitted with a wheelchair and scooter and the last time I spoke with a family member I was told he now required help feeding...
  6. D

    Update update on my hero!

    Well everyone it turns out that my dad does have ALS and its been very very hard on us for the past week. He was diagnosied with the slow progression A typical ALS. They also gave him Relutic(sp) to help slow the symptoms down. They said he had about 10 years. But everyone who knows my dad, and...
  7. P

    Diagnosed yesterday

    Hi Everyone, I just wanted to let you know that my husband, Eric, had his 3rd appt at UVA yesterday, and our fears were confirmed. He does have ALS, but they said he has a slow progression. I guess that it is a slow progression is good; if there is such a thing as something good with ALS...
  8. Lorie

    My Heart is Sick

    Today I went to help with Tim. He was having problems breathing and I found the CPAP Co. didn't come to fix his machine three weeks ago when I called them. My Family didn't tell me. (he may have to go to the hospital). The phone # is on the machine. I called while I was there and they got it...
  9. D

    one of the worst days ever

    So many of you know that I was going to keep you posted on my dads situtation......................................well the doctors confermied our theroy. My dad was diagnosed with ALS today:(:cry: We knew its what he had, but just officially knowing HURTS like no other! AT least they said it...
  10. R

    Alcohol and tobacco, makes ALS worse?

    I have heard that alcohol and smoking makes ALS worse and or could be one of the root causes. Has anyone come across any information about this? I have a very slow progression with the disease and my neurologist didnt seem to think it was much of a factor. I smoke less than a pack a day and...
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