slow progression

  1. S

    Ketogenic diet

    Hi All... I plan to start the ketogenic diet today. I was diagnosed 12/07 with leg onset and walk with a cane. I starting having fasc in my hands and lips this week. My voice sounds different (almost everyone I talk to comments on it). I am at least 50 lbs overweight and feel I can try...
  2. olly

    hypotonicity

    i have predominatly umn symptoms, but i have limb girdle muscle weakness. last year i was told i had hypotonicity(loss of muscle tone)in some areas that have spasticity and hypo reflexes. how is that so? weakness and hypotonicity are lmn signs and the others are upper. i suspect that it is pls...
  3. M

    hi,new.......

    Hi,my name is Michelle,lol 40 female from ST.Marys GA. i have recently been diagnosed with hereditary spastic paraplegia,but i personally beleive it may be PLS,or at least a co mplicated form of HSP,the reason for this is that most hsp's do not cause arm and speech problems as pls does,i also...
    • MICHELLE40f
    • Thread
    • age arm children diagnosed female hope hsp ice kids paraplegia pls problems progression slow progression speech symptoms young
    • Replies: 6
    • Forum: Primary lateral sclerosis
  4. C

    Appt with Dr. Michael Graves at UCLA

    Hi All, Dave's appointment was with Dr. Graves at UCLA neurology on July 5th (which also happened to be our 22nd wedding anniversary). Dr. Graves was great. Spent 2 hours talking with & examining Dave. Unfortunately, he said that ALS is the only explanation for Dave's condition, as no other...
  5. Omar

    TO QUIT OR NOT TO QUIT! that's the question

    Dear mates, I know how confused and uncertain lots of us are. The more I read about people with ALS, the more I understand that sooner or later I have to quit lots of things I like. I hope that after sharing with you my personal story I would be able to take the right decision. The fact is...
    • Omar
    • Thread
    • als back confused depressed diagnosed diagnosis hope planning progression reading slow progression story update weakness work
    • Replies: 54
    • Forum: People with ALS (PALS)
  6. W

    Hospice or No Hospice

    My dilemma is to keep hospice or to go without care. I have had hospice for over a year now and have recently been dropped by them due to slow progression. I don't understand, why can't we just have regular home health care without being the hospice? I'm angry! I feel that my local hospice...
    • wyALSpt
    • Thread
    • angry health home care home health care hospice progression slow progression
    • Replies: 21
    • Forum: People with ALS (PALS)
  7. R

    Looking for support

    It has been 2 1/2 years since I started having symptoms. They began after I contracted a bacterial infection, subsequent abscess, and deadly infection, all from a pain management shot. It took 5 months to clear my bloodstream, tissues and bones from the infection. HAS ANYONE ELSE HAD SYMPTOMS...
    • Raymond B
    • Thread
    • als arm balance bed cramping denial diagnosed falling hearing ideas immediately pain pls problems progression shoulder slow progression support symptoms therapy walker
    • Replies: 0
    • Forum: Primary lateral sclerosis
  8. P

    MND Multifocal Motor Neuropathy (MMN)

    Multifocal Motor Neuropathy (MMN) Greetings: Sorry to be here - sorry you are here also, but glad I can read about you and post this. Good news and bad news is what it all is. On Halloween I went for my third visit to a neurologist and he told me I have ALS. I asked if I had a second choice...
    • Peg B
    • Thread
    • arm clinic cramping disability emg family immune information insurance ivig mmn mnd neurologist planning progression slow progression test treatments work
    • Replies: 13
    • Forum: Multifocal motor neuropathy
  9. LittleHeart

    Hello Everyone

    Hello everyone, I found this forum a couple of days ago and i know i saw a thread for newbies but cant find it now. I married my husband in Dec. of 05 against my freinds and familys advice.He was diagonosed with ALS in March of 03. There were 3 other men that were freinds of his who were...
  10. L

    My pulmonary consult

    ...was today. After a thorough clinical examination the pulmonologist told me I had no evidence of pulmonary dysfuntion. He referred me for Forced Vital Capacity test to get a baseline. He then told me that in more than 20 years of seeing als patients I was the first he had ever seen with no...
    • ladave
    • Thread
    • als clinical diagnosed diagnosis fasciculations fvc hope progression slow progression symptoms test
    • Replies: 14
    • Forum: People with ALS (PALS)
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