Hi All... I plan to start the ketogenic diet today. I was diagnosed 12/07 with leg onset and walk with a cane. I starting having fasc in my hands and lips this week. My voice sounds different (almost everyone I talk to comments on it). I am at least 50 lbs overweight and feel I can try...
i have predominatly umn symptoms, but i have limb girdle muscle weakness. last year i was told i had hypotonicity(loss of muscle tone)in some areas that have spasticity and hypo reflexes. how is that so? weakness and hypotonicity are lmn signs and the others are upper. i suspect that it is pls...
Hi,my name is Michelle,lol 40 female from ST.Marys GA. i have recently been diagnosed with hereditary spastic paraplegia,but i personally beleive it may be PLS,or at least a co mplicated form of HSP,the reason for this is that most hsp's do not cause arm and speech problems as pls does,i also...
Hi All,
Dave's appointment was with Dr. Graves at UCLA neurology on July 5th (which also happened to be our 22nd wedding anniversary).
Dr. Graves was great. Spent 2 hours talking with & examining Dave. Unfortunately, he said that ALS is the only explanation for Dave's condition, as no other...
Dear mates,
I know how confused and uncertain lots of us are. The more I read about people with ALS,
the more I understand that sooner or later I have to quit lots of things I like.
I hope that after sharing with you my personal story I would be able to take the right decision.
The fact is...
My dilemma is to keep hospice or to go without care. I have had hospice for over a year now and have recently been dropped by them due to slow progression. I don't understand, why can't we just have regular home health care without being the hospice? I'm angry! I feel that my local hospice...
It has been 2 1/2 years since I started having symptoms. They began after I contracted a bacterial infection, subsequent abscess, and deadly infection, all from a pain management shot. It took 5 months to clear my bloodstream, tissues and bones from the infection. HAS ANYONE ELSE HAD SYMPTOMS...
Multifocal Motor Neuropathy (MMN)
Greetings:
Sorry to be here - sorry you are here also, but glad I can read about you and post this. Good news and bad news is what it all is. On Halloween I went for my third visit to a neurologist and he told me I have ALS. I asked if I had a second choice...
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Hello everyone,
I found this forum a couple of days ago and i know i saw a thread for newbies but cant find it now.
I married my husband in Dec. of 05 against my freinds and familys advice.He was diagonosed with ALS in March of 03.
There were 3 other men that were freinds of his who were...
...was today. After a thorough clinical examination the pulmonologist told me I had no evidence of pulmonary dysfuntion. He referred me for Forced Vital Capacity test to get a baseline. He then told me that in more than 20 years of seeing als patients I was the first he had ever seen with no...