als

  1. steve913

    ALS early symptom and progress update

    See UT San Antonio this Monday 16th, hopefully care team will be put in place Initial symptoms late oct 2024 left drop foot confirmatory ALS diagnosis May 2 Mayo clinic Still using walker What Ive done in last several weeks: 1 Installed 21 inch high toilet with Bidet system in master...
  2. JohnnyMags

    Stuck in ALS Hell

    Well it's been a week and a half since our visit to the ALS Clinic. I haven't posted anything about that visit because I've been so busy trying to organize what we discussed and dealing with non ALS symptoms. What I mean by that is at the clinic the different team members offered to do things...
  3. steve913

    Atypical slow progession ALS , search for caregiver, meds update

    My symptoms started with left drop back in nov 2024 , i posted my story under newly diagnosed. I use a walker since late february 2025. i feel fatigue and unbalanced and am losing grip strength on left side. Who determines if you have slower progression Als ? Im assuming your care team at ALS...
  4. JohnnyMags

    ALS Clinic Visit

    Well we went to our 2nd ALS Clinic meeting yesterday (5/20) at Temple. Talk about good news it turns out my wife doesn't have ALS or any neurological disase ........... Back to reality that last sentence isn't really true. In our various doctor and clinic visits it's been my dream that they...
  5. steve913

    Als diagnosis confirmed Mayo clinic Rochester Minn May 2

    i started with left foot drop started 5 months ago early november 2024. Unable to walk without walker left ankle also frozen with the footdrop by february Two weeks in hospital feb10th to 24th and under went Plex treatments Pletherisus plasma anti body exchange no improvement after 4...
  6. T

    Does environment cause/trigger ALS?

    I feel like there's not enough studies on the common factors among people who get diagnosed with ALS. I feel like if scientists can figure out a common link for sporadic cases, then it might help find a cure. I've completed a few ALS surveys regarding my background, but I don't believe they go...
  7. lgelb

    Lilly makes another ALS deal

    Story here. Lilly's multiple ALS bets are a good thing as they are typically pretty shrewd dealmakers.
  8. ReginaS

    Atlantic article about ALS

    This morning I read an article about ALS in the Atlantic. It's a good, short summary or overview on what happened in a community in France that had an above average amount of cases for a while. I found it interesting...
  9. JohnnyMags

    ALS treatments

    Well last week I had to take my wife to the ER for the Nausea, stomach pain & lack of nutrition. That was a rather unpleasant experience a lot of waiting and I mean a lot. They diagnosed her with low sodium & low potassium. They gave her IV fluids and IV anti-nausea and they told her to stop...
  10. J

    10 years of symptoms. Now potential ALS

    Hello, I came here initially when I started to have fasciculations and other issues back in 2015. (past threads: here, here, here, and here) For the last ten years I have lived with a slow progression of severe cramping, delayed muscle release, and as of one year now, bulbar symptoms...
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