als

  1. M

    ALS anxiety as a past CALs.

    Hi all. I hope everyone is doing as well as they can. My PALs passed last October just 9 months after DX. Obviously I am grieving deeply. Lately I have developed what look and feel like fasiculations in various parts of my body (I am very familiar with them due to my partner). Sometimes they...
  2. P

    Thoughts on ILB, which may slow ALS progression, per data from small clinical trial

    Treatment with a high dose of ILB, an experimental injection therapy being developed by Tikomed, was well tolerated and appeared to slow the progression of amyotrophic lateral sclerosis (ALS) in a small clinical trial in the U.K. That’s according to data from the exploratory Phase 2 study...
  3. T

    Is bruising in twitching areas a symptom of ALS?

    Hello all, I haven’t been able to find anything online or in the forums here, but is bruising in an area that’s been twitching non-stop (multiple muscle groups twitching) a sign of ALS? I started having twitches back in March that have moved all around my body at various times, but recently in...
  4. Z

    Town house

    How do I make my town home ALS friendly?
  5. A

    Could this be ALS? Advice

    Hello, I've been dealing with muscle twitching mainly in my legs and bottom. I also have burning sensation in my quads and my right foot is cramped super bad. But I think what's most concerning to me is that my legs have hardly any strength. I feel unsteady on my feet and have so much weakness...
  6. Nikki J

    Prevalence of ALS by states

    This paper ( I am linking the abstract but you can go to full paper from there. It is open access. If I link the paper it may expire) looks at age adjusted ALS by states using registry data. New England is high Vermont is first New Hampshire 3rd , Massachusetts 4th and Maine is up there too...
  7. K

    ALS like wildfire

    My wife first presented with symptoms in her right hand in March of 2022. She was diagnosed with ALS in May of 2023, although the neurologist said in Nov 2023 that it was likely ALS but he still needed to rule out a few things. She passed away in Nov 2023. I'm still in shock at the whirlwind...
  8. S

    Has anyone on here been diagnosed with ALS but turned out to be Lyme?

    Unfortunately on the 26th March this year I was diagnoses with ALS / MND we call it in the UK. I've been on here a few time. First in 2016 when my twitches started mostly in my legs and calf. The EMG then showed "nothing sinister". My muscle cramps and twitches started about 6-8 months after a...
  9. lgelb

    ACT for ALS update meeting

    On March 8, participants from C-Path, FDA and NIH provided updates on rare neurodegenerative disease activities, with a focus on ALS. The stream:
  10. P

    ProJenX ALS treatment gets back on track

    Some good news for Prosetin.
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