als

  1. B

    2 emg's, still not convinced

    Keeping it short, I have three questions. 1. I’ve had two emg’s done by two different neurologists. I didn’t think the first one was done correctly and I’m worried the second one wasn’t either. The second neurologist did the emg at my request because of my ALS worries and also to test the...
  2. S

    Symptoms I have observed

    Hi, I have read the stickies regarding ALS and I admire the commitment of everyone who takes the time to answer all the questions. I am 63 years old male having retired from work last March and my general health is good, I have haemochromatosis (iron overload) which is well managed by my...
  3. S

    Anxiety? ALS? Long read, sorry!

    First, let me preface this by saying I am 100% a hypochondriac. I constantly think something is wrong with me and even if someone says something jokingly to me (which is how this whole ALS suspicion started) I freak out about it. To be honest, I haven't seen my doctor about these issues yet as...
  4. P

    Don’t know where to turn, very worrying set of symptoms

    Hi everyone and thanks for taking the time to read my post. I am currently crippled by the fear that my worsening symptoms suggest ALS. For a time I put them down to anxiety but I can no longer accept that explanation as everything just seems too coincidental. It all started in August- I...
  5. Kristina1

    update on me

    I haven't posted in a while so I wanted to update. One of the main reasons I haven't been on here is... I'm writing a book! Or trying to. It has nothing to do with ALS or anything autobiographical. It's a scifi/fantasy romance. I've long been an avid fantasy reader, and always had stories of...
  6. lgelb

    PLS and UMND ALS

    Here is a sticky describing and differentiating these from each other and from more typical ALS.
  7. M

    Possibly ALS?

    Hello Everyone, Let me start by saying I have been in here for a month now reading up on discussions and symptoms and I have read through the stickies as well. Just wanted to say the community here is amazing and the people diagnosed with this diseased who take time to help people with care and...
  8. S

    Still have concerns

    Hi, I apologize for being back but the drs. can’t get to the root of my issues and keep telling me to go back to the neurologist. The Neuros keep saying come back in 6 months. My last visit drs thought I had celiac but now it turns out that was not the issue. Couple of questions if you don’t...
  9. M

    Als florida clinic referral.

    Has anyone in Florida been to The UF als clinic in Gainesville? I live in the Orlando area
  10. K

    Twitching/ vibrating/humming

    So the beginning of this saga began 11 years ago with stroke. Lesion located on my left Thalamus/ brainstem. Right leg has constant burning, aching, pins & needles, feels like someone tapping my right foot. That’s past history. Approximately 5months ago my right foot began twitching, then...
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