autoimmune

  1. G

    10 months of searching - do I have to be worried?

    Hello everyone, I (German guy) have been spending some time on these forums for the last weeks. Great work all of you somehow affected do here! The reason I registered here today is that I am facing nerve problems since autumn 2016 and the search (with many turns) still goes on. It all...
  2. R

    Worried I might have ALS

    So, Ive been worried about the possibility that I have ALS. Increasingly extensive research has only reinforced this in my mind. Im 24 and I've been experiencing fasiculations for about 4 months. They arent localized and have been all over with varying intensity (oftentimes the ones in my neck...
  3. A

    Brother passed of ALS in 2006 and I have twitches

    Hello, this is my first post in the forum. My thanks to all of you for taking time to read and/or respond to my post. My brother was in the civil engineering unit of the military and was exposed to 4 1/2 tons of urea without proper protective gear. He began experiencing ALS symptoms 1.5 weeks...
  4. E

    Wife has "likelihood of ALS" diagnosis

    I want to start by saying what a great group this is for someone like us. I have been reading these boards for awhile and find it remarkable how knowledgeable and caring the users are. For that I thank you. This is my first time posting, and I tend to get a little long winded at times, so...
  5. B

    New Emg, New Rabbit Hole

    Hi all.......I am back after swearing I would not be. My follow up EMG has left me stumped and scared. Just a refresher....over the past 8 months I have had a normal/unremarkable EMG on my lover and upper limbs. Clinical tests were all excellent. NCS stated Axonal Sensorimotor...
  6. B

    Scared mom of 3, hoping not ALS

    Let me start off by saying that I appreciate that this forum is here! Thank you to anyone that takes the time to read my post and respond. I know no one is a doctor or a neurologist but it does help to talk about the concerns. Ok so history: I am a 29-year-old female that has been relatively...
  7. J

    Read sticky and still very scared about ALS

    This may seem very silly to everyone on here but i am having some very real fears about the possibility of MND. I have a close friend whose mother died from it and another one whose father died from it. My story starts about 6 months ago but I will first tell you I have a long history of...
  8. J

    General questions

    Hello - My daughter is 18 years old and about two months ago she started having numbness in her foot like it was asleep when walking. She also started to feel like she was feeling weak in her legs which then spread to her arms. JFast forward to today. All blood tests are normal, so far MS, MG...
  9. G

    Tired. Scared.

    Good evening. Against the advice of those close to me, I really needed to do this. Before I begin, I did very closely read the main page on this forum and have very much taken into consideration its instruction. I take this very seriously as far as being a "DIHALS" person but can only think that...
  10. C

    24 and Terrified

    I've flirted with the idea of making an account for weeks now, I’ve been unwilling to feed into my own mounting paranoia, and until now I’ve been avoiding looking into the symptoms at all, but I’ve also found myself in need of community and the presence of those who can help me understand what...
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