balance

  1. S

    als or mmn?

    I was diagnosed in May 2014 with either als or mmn (multifocal motor neuron disease). I have had two rounds of IVIG (five days in a row, separated by three weeks). My question involves the Babinski sign, which I have briskly present on both feet. My Neuorologist didn't test the reflex, my...
    • steve6n1
    • Thread
    • als balance cramps diagnosed headache ivig mmn motor neuron disease muscle problems reflex symptoms test tests weakness
    • Replies: 8
    • Forum: Newly diagnosed
  2. N

    1st clinic visit

    FVC=69. Peg tube suggested. I've been taking Neudexta for a week and it has really improved my swallowing-too bad its not FDA approved for that-insurance wont pay for it. Bulbar and left arm involvement so far. Tongue a little weak. Was told to stay away from milk because of phlegm production...
  3. Nikki J

    Found this

    Happened across this today and it so explains the DIHALS! Type just about any medical symptom you're experiencing into your browser of choice and you'll find a wealth of potential causes, cures and complications, ranging from the mundane to the catastrophic. But calling your doctor because...
    • Nikki J
    • Thread
    • anxiety balance brain diagnose dihals headache information medical mistake research stroke symptom
    • Replies: 9
    • Forum: Off topic everything
  4. Q

    Favorite Assistive Devices for Text to Speech

    Its been several years since I made inquiries about "Text to Speech" assistive devices for PBP. I'd like to start a discussion related to several questions. 1) Do people have favorite devices for use when you can still type on a keyboard? 2) What is their favorite supporting software for...
  5. G

    Worried about MND plus Respiratory/Bulbar onset

    Hi all, My last thread was closed for some reason. Anyway as you know I've had a bad leg since around October last year it started in the thigh with pain now I get pain in all of my left leg and twitching every day in the left knee, thigh and calf. My Rheumatologist has ordered a spinal MRI...
    • GuyFromTheUK
    • Thread
    • back balance breathing bulbar bulbar onset choke early fibromyalgia food fvc hope ice mnd mri onset pain respiratory twitching worried
    • Replies: 31
    • Forum: Could this be ALS?
  6. N

    Scared to Death again

    Hello everybody. I've done it ...visited Dr Google and now I think I might have ALS. I'm a 38 year old male and went through a huge ALS Scare 2 years ago. I went to a neurologist who did 2 EMGs... one in 2012 (lower limbs) and one in 2013 (upper limbs, hands, etc). Both EMGs were clean and I...
    • NickT76
    • Thread
    • als arm balance battery cramping death fingers mri neurologist scared stress test tests work
    • Replies: 14
    • Forum: Could this be ALS?
  7. W

    Concerning symptoms, foot atrophy?

    Hello, First of all, I apologize for starting a thread asking for my symptoms. I wanted to avoid writing in this forum mainly because I thought it was insensitive and disrespectful of me to ask about my concerns to those who are affected by this disease. Thank you for your precious time and...
    • waltz
    • Thread
    • atrophy balance female foot insurance media medical muscle planning student symptoms twitching wanted weakness website worries
    • Replies: 5
    • Forum: Could this be ALS?
  8. N

    Hello, new to forum

    Hello everyone! I am new to forum and would like to share my story and hopefully gain some insight . My medical history is quite complicated and I will start by saying that I have had neurological issues since I was a teen. Started with seizure like episodes and then progressed to balance and...
    • nygal
    • Thread
    • age als arm back balance bed clinical cramping cramps elevator emg fell gabapentin immediately medical mri muscle neurologist problems story testing weakness
    • Replies: 2
    • Forum: Could this be ALS?
  9. adozi

    Staying Mentally Strong After an ALS Diagnosis

    I think this warrants its own post. Hope it helps people! "Dealing with any chronic or terminal illness is challenging for anyone. It's OK to not be OK with it," said Kraunelis. "The hand that’s dealt to us isn’t always fair. But how we play that hand is within our control. We can choose to...
    • adozi
    • Thread
    • ability age als anger balance coping dad denial depression diagnosis driving early family healing heart helpful hope ignore improvement information life love mental health natural person with als problem questions stages support treatment
    • Replies: 13
    • Forum: General discussion about ALS/MND
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