bedridden

  1. L

    What are first ALS symptoms?

    I am a 46 year old female. In December of 2008, I was diagnosed with chronic hives and angioedema (facial swelling). Bloodwork showed that I had a chronic urticaria index of "greater than 50." Normal CUI is 0 to 10. Allergist said that this result showed likelihood of autoimmune disease...
    • Laurie H.
    • Thread
    • als als symptoms autoimmune back bedridden breathing burning clonus diagnosed female food hyperreflexia muscle muscle twitches shower spasms sustained clonus swelling symptoms symptoms? twitches
    • Replies: 14
    • Forum: Could this be ALS?
  2. JOSIEM02

    Scared

    My mother in law was diagnosed fed. 2009. She has bulbar onset. Since then she can no longer talk, eat or drink by mouth. Her peg was put in in June. While in the hospital she got Colitsis (spelling) 16 days later she came home. She was doing OK for about 2 weeks then she became dehydrated...
    • JOSIEM02
    • Thread
    • als bedridden bulbar bulbar onset medical muscles nursing home onset peg progression scared worried
    • Replies: 8
    • Forum: Current caregivers
  3. H

    Can Guillain Barre or Transverse Myelitis actually be ALS?

    A previous post brought this thought to my attention. I did not want to take away from their post and submit my own concerns regarding my mother. Therefore, I have started a separate post. My maternal great-grandmother was diagnosed with ALS many years ago. She lived with ALS for 5 years...
    • homerunbetty
    • Thread
    • als als? back bed bedridden diabetes diagnosed dying familial fell mucus reading seizures sleep swallow tongue walker
    • Replies: 2
    • Forum: Could this be ALS?
  4. I

    Thank God! I am so happy to Be Back!

    Hi Everyone! God........I have missed out on sooooo much, and have so much to share with you guys. I have been going nuts not being able to post, and so much has happened since I last posted. First of all, my heart goes out to all my friends' families, the ones that have lost loved ones. I do...
  5. K

    Advance directive, (living will)

    Hi all, I must say that I truly appreciate the people who have responded to my posts the past two weeks. I am faced with a poor prognosis, and have been told by one of my doctors, that I MUST have my Advance Directive filled out before I go back on my chemotherapy, which is in three weeks...
    • KEDASO
    • Thread
    • age als back bedridden death end of life equipment family feeding feeding tube health immune insurance life medical nutrition pain power problems quality of life questions trach tracheotomy treatment ventilator
    • Replies: 28
    • Forum: General discussion about ALS/MND
  6. K

    Problem with Urinary Catheter, and Bladder-spasms while on amphetamines

    Good morning, everyone, I have a neurogenic bladder, thus have a urinary catheter. I have had it for about 1 1/2 years now. And now have two problems: I have had the hardest time with the damn thing. If I was bedridden, I wouldn't be having that many problems. But I am not--I am still able to...
    • KEDASO
    • Thread
    • back bedridden breathing catheter choking coughing drugs early electric wheelchair fatigue immediately meds neurogenic bladder night problem problems sleep spasms test wanted wheelchair
    • Replies: 17
    • Forum: General discussion about ALS/MND
  7. K

    excessive urination

    Does anyone know if it is normal for someone bedridden and only getting nutrition through a peg to go to the bathroom over 10 times a day? My mother is now only getting up with our help to be sat on the bedside potty. She has signaled 13 times today. She doesn't think she has a uninary tract...
  8. K

    joined earlier this year but never said hello

    Hi, I'm kylisa. My mother was diagnosed in Feb 08. She began having major problems in June 07. Now, she is almost bedridden, fully fed through a peg, has no voice, and has lost the majority of use of her left arm and hand. She is bulbar now with laughing and crying spells. I pray everyday that...
    • kylisa
    • Thread
    • arm bedridden bulbar crying peg problems voice
    • Replies: 2
    • Forum: New members
  9. A

    Personal Question...

    My mother has been almost completely bedridden the past few months, but last weekend she fell and injured both feet and is now completely immobile. We're waiting on a Hoyer lift so she can get from bed to her potty chair. However, while we are waiting things have become very difficult. We...
  10. A

    Mother with ALS is Immobile...

    Hello. I am new to these boards and this is my first post. My mother has suffered from progressively worsening loss of muscle control in her limbs for about two years, but was just diagnosed with ALS in the last 6 months. She lives at home, but has lost use of her legs and is now bedridden...
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