brain

  1. S

    Need some Advice regarding my symptoms

    Hi there everyone, its been almost 2 years since i last logged on here, i always hoped i would never have to come back but unfortunately i have found myself in a position where i need a bit of advice from all of you. As mentioned in my post 2 years ago, i had started experiencing some...
    • Sandylee
    • Thread
    • advice als do i have it atrophy back brain diagnosed diagnosis early emg eye fingers food health love mri muscle pain speech stiffness swallowing symptom symptoms test thumb twitching weakness wrong
    • Replies: 2
    • Forum: Could this be ALS?
  2. D

    Fecal Transplant

    Okay... I know it's been discussed a bit before in the forums, but not at length. But the more I read about the newly found gut-brain connection, the more I believe that a series fecal matter transplants could slow or stop some types of ALS progression. I know, call me crazy. Has anyone heard...
  3. L

    Can I have both ULM and LMN without ALS?

    Hello, This is my first post here, and I hope to learn more about the members of this forum and about the potential signs of this terrible disease I'm a 30 years old Hispanic male living in the US. In July 3, 2016 I started having body-wide fasciculations; they were in very single muscle from...
    • lujrey
    • Thread
    • als als? back brain clinical denervation diagnosed diagnosis emg eyes family fasciculations fear heart hope mri muscle muscles neurologist sad scared tests twitches umn weakness young
    • Replies: 8
    • Forum: Could this be ALS?
  4. D

    Praying it's not true

    Last Thursday, my 60 yr old husband (husband of 6 weeks, I should add!) was told by a neurologist that he has ALS. His only symptom is weakness in one hand which came on suddenly in June 2016. At that time, his PCP ordered an MRI and he was promptly sent to a neurosurgeon who diagnosed him with...
    • DebbieDWill
    • Thread
    • als atrophy brain denial diagnosed diagnosis emg fingers improvement info movement mri muscle neurologist only symptom physical therapy symptom tests therapy weakness
    • Replies: 9
    • Forum: Newly diagnosed
  5. J

    New diagnosis.. In shock

    Hi Everybody, My name is Jennifer and my 57 year old husband was just preliminarily diagnosed with Bulbar Onset ALS. We are completely in shock as his first symptoms (that he/we can recall) started in early June 2016 (maybe late May). He began with slurred speech, emotional lability and his...
    • Jennanne
    • Thread
    • advice age als back brain bulbar bulbar onset clinic diagnosed diagnosis early emg emotional lability kids mri neurologist new diagnosis onset respiratory second opinion slurred speech speech stroke swallowing symptoms
    • Replies: 12
    • Forum: Newly diagnosed
  6. I

    One year anniversary of neurological symptoms - still no answers

    Hi everyone. Some background info before we start: I am 30 year old male. I have been diagnosed in the past with: Spina Bifida Occulta Scoliosis (30 degree curve in Lumbar and 49 in Cervical region of spine) Sensorimotor OCD related to swallowing and breathing Testicular cancer which was...
    • ibustinside
    • Thread
    • age als ankle babinski's book brain clean emg cramps emg fasciculations genetic hiv info insurance lyme mri muscle neurologist onset paresthesia swallowing symptom symptoms tests twitching unsure wanted worried wrists wrong
    • Replies: 3
    • Forum: Could this be ALS?
  7. L

    Fasciculations

    Hi all, Question of the week. Curious to understand if the rate and frequency of fasciculations depicts the speed of progression or not? When cuddling with my PALS, it is amazing the speed and constant pinging all over felt. I understand these are the motor neurons firing off as they attempt...
  8. JennyC

    Here we go again

    So, seriously, how much can one person take before they snap?? You all know this weird "curse" as I call it this year with all of the serious health issues in many different family members and then I had brain surgery a couple weeks ago and woke up to find out my Gram died. Well now we are in...
  9. gooseberry

    How life changes

    Trying to be good to myself...hired a lawn service, getting a massage regularly, groceries are delivered....yet I am tired. Still bone deep tired. Everyone says ...My you look so tired!!! Yet I feel good...better than I have in a long time. My brain fog is beginning to lift, we are enjoying...
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