breathing

  1. E

    Respiratory Weakness Early- Typical Path

    I read in another thread that there are a few on here that had respiratory issues early on and they all seemed to follow the same path, but I haven't found a post that talks about how the disease progressed. My Mom had a FVC of 34% when she was diagnosed last month. Her symptoms started with...
  2. G

    Nrf1

    Anyone heard of this? A pALS has recently started along with mmj and reports a breathing improvement. A Search revealed zilch.
  3. K

    Some thoughts

    Dear all, My name is Kay and I'm based in London. I am not an ALS sufferer but I found out about this disease by Anthony Carbajal's campaign to raise awareness about it. Most watch and even participate in the ALS ice bucket challenge but didn't take the time to actually understand the gravity of...
    • kay2017
    • Thread
    • age als angry awareness brain breathing bucket challenge death diagnosed equipment fingers heart hope ice ice bucket challenge insurance life lonely medical equipment research stages support technology treatments video wrong
    • Replies: 8
    • Forum: General discussion about ALS/MND
  4. E

    My Mom's Diagnosis- Sporadic Bulbar Onset ALS

    It was sometime last spring when my Mom's voice started sounding hoarse. She discounted it as being sick since she typically loses her voice once a year for a couple weeks when she gets a cold. In June, my best friend got married and she couldn't stop crying. She said she was just tired ,but...
    • ersmzd
    • Thread
    • als atrophy bipap brain breathing bulbar bulbar onset clinic crying diagnose diagnosis early friend fvc hope muscle neudexta neurologist onset pain progression pseudobulbar research respiratory sporadic swelling tests thumb
    • Replies: 3
    • Forum: Newly diagnosed
  5. A

    trying to keep the breathing muscles

    I’ m here with you, for my precious mother, who is 69 years old; she was diagnosed with Als in September 2016. Until then, she was a very very active person. All those months we have made great efforts to slow down the disease, but it did not work. Her symptoms started in April 2016, in...
    • ariet
    • Thread
    • als antioxidants breathing diagnosed diet disability exercise headaches muscle muscles symptoms therapy vitamins work
    • Replies: 10
    • Forum: General discussion about ALS/MND
  6. I

    Smoking Stick!

    My PALS (my mom) was a smoker when she was diagnosed in July 2014 with motor onset ALS. As the decrease in her ability to use her arms and hands outpaced the decrease in her lung function, her ability to enjoy her daily cigarettes became compromised only by her ability to lift the cigarette to...
  7. M

    Need advice regarding my mother's situation

    I would like to share my mother’s story with you in the hopes that I can receive advice regarding my family’s situation. This might seem like a very ‘dry’ explanation of the situation, but I assure you that there are a lot of emotions involved My aim is to give the clearest and most objective...
    • Mandarine783
    • Thread
    • advice age als breathing confused cry dad denial depressed diagnosed diagnosis equipment eyes father friend life peg planning sad story stroke support tests tracheotomy treatments wanted worry
    • Replies: 7
    • Forum: General discussion about ALS/MND
  8. J

    Humidification and non-invasive pressure support

    Hello! Would be grateful for any input. My husband is having a real struggle with respiratory stuff -- especially phlegm. A huge struggle to get it up...don't think I have to go into detail for this group, right? Anyway, we've found a system that sort of keeps it under control, involving...
    • jfaidley
    • Thread
    • battery bed breathing caregivers humidification info phlegm pressure respiratory running support trilogy
    • Replies: 12
    • Forum: Current caregivers
  9. K

    handicap bathrooms

    I am in a pwc all day and rest my arms on the armrests. My toilet at home has the raised seat and railings on the side. I am fine with this. My core and arms are getting weaker. The last time I used a public bathroom (at the clinic ) was awful. I was so floppy, couldn't reach the grab...
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