bulbar onset

  1. C

    Time to say HI

    I have been lurking on this forum for quite some time and I find it very helpful and thought it was about time to make my presence known. My husband was diagnosed on February 4, 2014 with bulbar onset. He seems to have a slow progression, which is good. However there are times when even a...
    • codyclan
    • Thread
    • bulbar bulbar onset diagnosed helpful onset progression slow progression
    • Replies: 16
    • Forum: Newly diagnosed
  2. G

    Clarification

    Hi all, About 6 months ago I began having body wide fasciculations and went to a neurologist for testing. I had an EMG and she told me that it had ruled out ALS. The EMG was performed on just my limbs. Since then I have developed some trouble swallowing pills and constantly having to clear my...
    • Gvan
    • Thread
    • als back bulbar bulbar onset emg fasciculations neurologist onset swallowing symptoms symptoms? testing trouble swallowing
    • Replies: 6
    • Forum: Could this be ALS?
  3. M

    Help my mother

    Hi everyone, Not sure where to start but I wish I can find some kind of help... Mom was diagnosed a bit more than 2 y ago with bulbar onset. It has progressed enormously in the past months to the point where she does not talk, eat and move anymore; just slightly her head and one of her hands...
    • Momhasit
    • Thread
    • back bipap bipap 24/7 bulbar bulbar onset diagnosed driving food heart mad meds mucus onset peg reading saliva sleep suction work
    • Replies: 7
    • Forum: Current caregivers
  4. V

    New to Forums, Diagnosed in April

    Hello all, I was diagnosed with ALS in April of this year, about a year after I starting showing signs of slurred speech. So, I'm not newly diagnosed, and have had time to process my situation, but I'm new to the ALS forums, having only registered recently. I realized I would benefit from...
    • vishara
    • Thread
    • als back bulbar bulbar onset cramping decline diagnosed driving eating fatigue food foot frustrated helpful introduction life newly diagnosed onset progression slurred speech speech swallowing test tongue
    • Replies: 19
    • Forum: Newly diagnosed
  5. S

    Hello all, just a few symptom questions

    Hello all. I've been scanning this forum for a while and finally joined. First off I just wanted to say God bless you all. You are all some the strongest most courages individuals i have come across in a long time. The main reason I joined was because my aunt was recently diagnosed with bulbar...
    • setm0812
    • Thread
    • anxiety back brain breathing bulbar bulbar onset burning conversation diagnosed fatigue ice information onset problem questions sleep speech symptom symptoms test tongue wanted weakness work worried
    • Replies: 5
    • Forum: Could this be ALS?
  6. Nikki J

    From Mass General

    This is part of a fundraising letter from my neurologist ( this is the first time I have received one and I donated to them on more than one occasion so I did not mind at all getting it) I think I removed all fundraising parts but thought the rest might be of interest We, at the Massachusetts...
    • Nikki J
    • Thread
    • als als awareness awareness bulbar bulbar onset cell clinic clinical data diagnosis fundraising hope ice ideas information mri natural neurologist onset research speech stem cell stem cells testing therapy treatments vitamin d worldwide
    • Replies: 2
    • Forum: Research and trials
  7. T

    Question about facial muscles

    Hi, for the last two months I've had what is best described as this strange tightness in my cheeks area/inside my mouth on both sides. This tightness is also under my front lip inside my mouth. It's always there and does not come and go. At times I get the sensation like I am drooling but...
    • tevs
    • Thread
    • als bulbar bulbar onset burning cramps emg gabapentin ice life mri muscle muscles neurologist onset symptoms symptoms of als test tongue twitches twitching weakness
    • Replies: 11
    • Forum: Could this be ALS?
  8. I

    Bulbar onset

    Hello everyone. I posted on here a few months back but would like to ask a question or two more. Today is finally my emg. I have been twitching since March of this year and it seems to have gotten progressively worse. Today i will finally find out why. My Neuro prescribed gabapentin for...
    • Inhopeofacure
    • Thread
    • advice atrophy back ball bfs bulbar bulbar onset diagnosed emg emg? gabapentin hours muscles onset problems questions swallowing symptom symptoms tongue twitching update weakness work
    • Replies: 2
    • Forum: Could this be ALS?
  9. Graybeard

    Bulbar Onset Decline

    Looking to the future, I need to know the chances I will lose use of my arms and legs. I know every case is different, but I would like to know the odds. So far, only my right hand is affected. I still type with it, but cannot do buttons, and soreness is creeping up my thumb. My ability to...
  10. G

    A question on bulbar onset

    Hi Guys, I won't waste much of your time, just wanted to have few clarifications. It would be really helpful if you can please comment on any of symptoms if that looks like ALS. I started having frequent facial twitches (i.e. tongue, eyes, throat, lips, cheek etc.) and have calf muscle...
    • gurudev
    • Thread
    • age als arm back bulbar bulbar onset denervation diagnosed early emg eyes helpful hope muscle muscle twitches neurologist onset problem speech swallowing symptoms test tests tongue twitches wanted
    • Replies: 4
    • Forum: Could this be ALS?
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