bulbar

  1. G

    How does Bulbar progress?

    HI, I'm new to the forum. What is the progression for Bulbar ALS? It seems that progression can vary greatly - slow for some and fast for others. But, if it starts with the loss of speech, would it progress downwards (arms to legs)? Or, can a person with Bulbar onset start with loss of...
    • gigi1
    • Thread
    • als als? atrophy bulbar bulbar als bulbar onset clinic diagnosis emg fasciculations genetic lyme mri onset progression speech testing tongue
    • Replies: 3
    • Forum: Could this be ALS?
  2. C

    Possible Bulbar ALS?

    Good morning all, To start, a few things about me: I'm a 33 year old male with 2 previous EMG/NCVs of the arms in 2012 and 2014. These were done as I suddenly had muscle twitching all over the body. My neurologist assured me that it wasn't ALS. Fast forward to 7 weeks ago (around 3/1/17)...
    • cubbies
    • Thread
    • als als? back bulbar bulbar als conversation diagnosed emg family life medicine muscle muscle twitching neurologist nose pain questions sleep symptoms symptoms? tongue twitching urgent voice worried
    • Replies: 19
    • Forum: Could this be ALS?
  3. P

    Follow-up questions, old thread closed

    First, here is a link to my previous thread here: https://www.alsforums.com/forum/do-i-have-als-als/28732-new-forum.html. I was off the forum for a year, so it closed down. Quick background - after noticing some symptoms in late 2014/early 2015, I was referred to a neuro and had an EMG done...
    • Piedoctor
    • Thread
    • age als symptoms atrophy bulbar clinic clinical diagnosis early emg foot foot drop medical questions shoulder stages symptoms test thenar weakness
    • Replies: 9
    • Forum: Could this be ALS?
  4. M

    Grateful for any help-Bulbar?

    Thank you for any advice. My mom was just diagnosed w Bulbar onset. I am planning to be her caregiver, and also have 3 children. I am 46. In taking her to spots i noticed that some of the symptoms she has I actually have too, and have been ignoring. What ate the chances right? Specifically, I...
    • Momofthree
    • Thread
    • advice bulbar bulbar onset caregiver children diagnosed muscle muscle weakness onset planning speech swallow symptoms tongue weakness
    • Replies: 5
    • Forum: Could this be ALS?
  5. S

    Phlegm issues

    Hi friends! My mom was diagnosed in Feb/17 and seems to have bulbar onset although the doctors haven't said. Her first symptom was hand weakness and now she has slurred speech, decreased FVC and just recently issues with swallowing. We live in Canada and are getting the generic version of...
    • Sroccia
    • Thread
    • advice bulbar bulbar onset canada choking cough assist diagnosed drugs fvc helpful hope issues life nuedexta onset phlegm possible a problem progression quality of life slow progression slurred speech speech swallowing symptom weakness
    • Replies: 9
    • Forum: General discussion about ALS/MND
  6. A

    FEAR TO ALS (my mother had)

    Hello everyone; I´ll try to be brief. I read the threads, but I have doubts and fear. Sorry for my english, but my native language is the spanish. I´m from Argentina My mother died of ALS bulbar on september 2015. I´m fisioteraphist, I can see yours sympthoms, your health decrease, you know...
    • ANAXIS
    • Thread
    • als anxiety brain bulbar emg fasciculations fatigue fear health sporadic sympthoms symptoms tests
    • Replies: 3
    • Forum: Could this be ALS?
  7. V

    Is this bulbar?

    I am grateful for any responses to this question and to those who give their time to read this. I am waiting for a follow-up appointment about some symptoms, which include leg muscles on one side wasting away, feelings of weakness and extreme muscle soreness, some walking difficulties and...
    • veryworriedmom
    • Thread
    • als anxiety atrophy bulbar choking diagnosis food lump mri muscles speech swallowing symptoms symptoms? tongue trouble swallowing weakness wrong
    • Replies: 4
    • Forum: Could this be ALS?
  8. J

    Worried about my symptoms

    Hello, Thanks in advance for listening to my story. I'm a 39 year old male. Nothing special. My sysmtoms started last November. I started twitching in my right leg above the knee. It lasted longer than normal and I chalked it up to allergies at first. It started all over my body. Then came the...
    • Jax7722
    • Thread
    • allergies als atrophy bulbar bulbar onset cpap death emg mri neurologist onset problems scared sleep story symptom symptoms tests twitches twitching weakness worried
    • Replies: 8
    • Forum: Could this be ALS?
  9. P

    Intro and a question

    Hi all, My sister-in-law (my brother's wife) is in the last stages of bulbar ALS -- only a bit of movement possible in fingertips and lower legs. She can still talk, but my brother can interpret only about half of what she says. She coughs and chokes on her saliva many times during the day. Her...
    • parakeet
    • Thread
    • als brother bulbar bulbar als caretakers cold decline finger guilt movement saliva stages swallowing symptoms
    • Replies: 5
    • Forum: Current caregivers
  10. P

    Diagnosis question, thank you.

    Hello. Thank-you all for taking the time to read this. I've posted on here before over the past year or so (I think that's the timeframe) but noticed that my threads have been closed so have started a new thread. I hope that is okay. Very briefly, I have a history of some symptoms that look...
    • pleasehelp
    • Thread
    • als atrophy bulbar clinical diagnosis emg food helpful hope info medical neurologist sensory symptoms swallowing symptoms tests trouble swallowing twitch twitching weakness
    • Replies: 1
    • Forum: Could this be ALS?
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