Hi I was hoping others who are on or have tried mexiletine could chime in with their experience. Apologies in advance for the length of this post.
Background: I'm in the AMX0035 (amylyx) clinical trial in the open label phase meaning we know for sure I am receiving the real drug. I was told...
Hey everyone,
I am 20 years old, I have alwaya been twtiching mildly across my calves and maybe other parts too, did not pay attention to it. However 8 months ago I started twitching in my tricep, localy, it was a hotspot which lasted on and off 2 months. It vanished after and now I mainly get...
Hi all,
I’ve been lurking for a while but have been hesitant to post because I don’t want to upset anyone by jumping the gun.
I’ll try and make this short but I just need some insight into what I’m experiencing. It started with twitching that I noticed going on two months ago. The twitches...
als
als symptoms
back
burning
clinical
early
emg
fatigue
fear
mri
muscle
neurologist
night
questions
second opinion
shoulder
symptoms
symptoms?
tests
twitches
twitching
vitamin d
voice
weakness
worried
Good evening. After reading the stickies, I am still left with some questions. Here’s where I am at—
1. I have had body-wide twitching for about 6 weeks. It seems to be mostly in my legs now, with some in my face , back, and arms (not often). The twitching occurs on both sides. Some days...
ability
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als?
atrophy
back
brain
clinical
early
emg
family
fear
fingers
ice
mri
neurologist
night
questions
shaking
symptom
testing
twitching
voice
wanted
weakness
worried
I will try to make this brief.
Symptoms:
*. Muscle twitching: started out in a few places about a month ago. Then increased all over. Now has decreased but in more specific spots (calves, thighs, abdomen, shoulder area). It seems almost as if the twitching is moving from lower body to...
abdomen
age
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als?
back
clinical
emg
family
female
food
lump
mri
muscle
muscle twitching
neurologist
night
shaking
shoulder
spasms
swallow
testing
twitching
wanted
work
worried
Hello,
Like many others I have been visiting this message board after experiencing symptoms that led me to the internet - that led me here.
I have read many posts and many stories on this site and have much respect for this wonderful forum.
I will try not to make this a long and hard to read...
Well, damn. My local neurologist, after two months of elimination tests, has now indicated likely NMD, with ALS being the most likely candidate.
He basically kicked the can down the road and referred me to Dr. Pulley at Jacksonville Shands. We see him in late April for a second EMG and opinion...
als
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ball
candida
clinical
diagnosis
early
emg
fasciculations
life
mri
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planning
progression
spasms
swallow
symptom
tests
twitches
weakness
work
Thank you all for taking the time to read my post and I would appreciate any advice or knowledge you can pass on. I have read the "before you post sticky".
So this all started the the 1st week in Dec, I woke up 1 morning and had a persistent twitch in my left thigh. It prob went on 4-5 days...
Hello everyone. I'm new on here have alot of fears and anxiety about ALS.
I have not been diagnosed. I've had four opinions from 4 different doctors that say I do not have that. I do have an EMG schedule in 3 weeks.
I've been having a lot of pain in my legs feet arms. I would say minimal...
als
als fear
anxiety
clinical
cramping
diagnosed
eating
emg
fear
fibromyalgia
meds
neurologist
pain
problem
second opinion
shortness of breath
spasms
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symptom
symptoms
twitching
wanted
weakness
work
worried
worried about als
Hello I'm sorry to bother you I'm not sure if you remember me my husband thought he had Als but his emg only showed signs of myopathy. I have let the thought go but yesterday we went to Parkland for a clinical exam with a neuro and we suspected that after seeing the emg they would do a muscle...