So, I had my follow up with my neurologist last week and had another EMG.
She performed it on my right arm and right leg. She was actually testing for something associated with myotonia, based on my symptoms and clean clinical exams.
During the testing on the right arm, in the bicep area...
Good morning to all.
The symptoms started back in May 2016. First, I noticed Atrophy in my left hand with pain here and there. A few weeks later I started having muscle Atrohpy in my forearm with very bad pain. I can easily feel the bone in my left arm where it folds compared to my right arm...
First, here is a link to my previous thread here: https://www.alsforums.com/forum/do-i-have-als-als/28732-new-forum.html. I was off the forum for a year, so it closed down.
Quick background - after noticing some symptoms in late 2014/early 2015, I was referred to a neuro and had an EMG done...
I've spent some time looking at some threads, etc. but wanted to pose a question or two.
My issue started a few months ago (Jan) where I was at lunch and a glass slid from my hand which typically I wouldn't think too much about. I then got home and poked around and did some research as I...
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Hello everyone
I want to first thank you for taking the time to read my post.
About a week and a half ago, I noticed that my right leg and arm felt a little off. They felt as if they were lighter/weaker than my left side. I could still do everyday things such as walk normally and grip things...
I finished the Tirasemtiv Clinical Trial.
Two weeks open label, to test reactions.
48 weeks double-blind trial.
An extra two weeks due to scheduling.
My breathing numbers have not dropped for the past 24 weeks, and my leg and arm strength improved over the past 18 weeks (slightly). My small...
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Hey all!
Love the fact that a forum like this exists to ask questions of people with real life ALS experience! It so helps when some of us out here are scratching our heads wondering what's really going on. On the flip side...I hate that ALS exists!!!
To be brief. 49 year old male with over...
Thank you for having a place to ask these questions. I have a deep sympathy for people that are suffering. Now I think I might be one.
I'm not sure where to start, but ask that you please be patient with me. I have researched over and over again the symptoms I am experiencing and it leaves me...
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Hello.
Thank-you all for taking the time to read this. I've posted on here before over the past year or so (I think that's the timeframe) but noticed that my threads have been closed so have started a new thread. I hope that is okay. Very briefly, I have a history of some symptoms that look...
I've read the primer thread and am not sure what to do with my symptoms:
Symptoms began with swallowing problems last July. I'm 43 y.o. and have been an active athlete my whole life. Initially diagnosed esophageal motility disorder of unknown origin. Barium swallow was normal, manometry showed...