conversation

  1. KimT

    I was on the radio today

    I have a friend who is a writer and religious historian. He has a talk radio show every Sunday afternoon and I was his guest today! My friend is an atheist so I was a little apprehensive about having a 30-minute conversation with him, live, on air!!!!! It went well. I was able to advocate...
    • KimT
    • Thread
    • advocate als back conversation friend
    • Replies: 8
    • Forum: Stories of hope
  2. M

    Pulling rank

    Here's my vent of the week... I find myself being sensitive to some things that in the past would not have bothered me. I don't know if it is the sleep deprivation, the worrying or whatnot, but listen to my story. My sister in law has been very supportive throughout my PALS illness. If...
    • Manhattanite
    • Thread
    • caregiver caretakers conversation dad denial feeding hospice night nutrition questions sleep story vent voice wanted women
    • Replies: 17
    • Forum: Current caregivers
  3. C

    Possible Bulbar ALS?

    Good morning all, To start, a few things about me: I'm a 33 year old male with 2 previous EMG/NCVs of the arms in 2012 and 2014. These were done as I suddenly had muscle twitching all over the body. My neurologist assured me that it wasn't ALS. Fast forward to 7 weeks ago (around 3/1/17)...
    • cubbies
    • Thread
    • als als? back bulbar bulbar als conversation diagnosed emg family life medicine muscle muscle twitching neurologist nose pain questions sleep symptoms symptoms? tongue twitching urgent voice worried
    • Replies: 19
    • Forum: Could this be ALS?
  4. T

    Symptoms that are hard to ignore

    Thank you for having a place to ask these questions. I have a deep sympathy for people that are suffering. Now I think I might be one. I'm not sure where to start, but ask that you please be patient with me. I have researched over and over again the symptoms I am experiencing and it leaves me...
    • Totallygomer
    • Thread
    • ability als arm back clinical confused conversation cramping early emg gabapentin hope ignore immediately mri muscle neurologist pain power questions shoulder surgery symptoms thumb twitching weakness
    • Replies: 7
    • Forum: Could this be ALS?
  5. C

    first holiday-how?

    My sister was diagnosed about a year ago. We had a family reunion this summer, while she could still communicate yes/no, and her facial expressions helped us read her. Her ALS has taken over her upper region and she can no longer eat, speak, or show facial emotions. She has a feeding tube and...
  6. Lkaibel

    It's The Small Things...

    I did some small things today that made me feel better. I moved the weights and bench from the middle of the basement that I had to look at every time I fed the cats (he does not do that anymore). He had not used them since November and today I realized it was paining me to see those All The...
    • Lkaibel
    • Thread
    • brain cats conversation denial hours meals progression running slow progression support work
    • Replies: 19
    • Forum: Current caregivers
  7. Kristina1

    talking to my kids

    We have held off on saying anything to my kids after my initial provisional diagnosis. My diagnosis was confirmed today. We want to at least initiate a conversation with our older two, who are ages 6 and 8. We don't want to scare them but they have noticed some of the little changes and...
  8. C

    Intro and First Clinic Today

    I wanted to thank everyone here, past and present. With Mom's diagnosis last Thursday and her first clinic day today, my mind and emotions have been in a whirlwind. I've probably spent 6 of the last 7 days worth of time on these boards. There is so much wisdom here to catch me every time...
    • Ceelea
    • Thread
    • clinic conversation diagnosis equipment information progression wanted work
    • Replies: 8
    • Forum: Current caregivers
  9. E

    Worrying symptoms

    Dear all, after having read a lot of the posts on these forums, I finally decided to post. I am very touched by all the comments and advice given by all suffering from this terrible disease. I am a 40 year old male, and I have noticed especially in the last couple of weeks that sometimes I...
    • edmar22
    • Thread
    • advice arm bulbar bulbar onset conversation fasiculation heart hope muscles onset saliva speech stress symptom symptoms tongue voice work worried
    • Replies: 3
    • Forum: Could this be ALS?
  10. N

    Is he going to choke to death?

    So today my sister had a 'conversation' with my (non-speaking bulbar onset) father, and he finally said it explicitly. He doesn't want a feeding tube, and that's that. He chokes on food almost daily even though he of course tries to be super careful while he eats and eating takes most of his...
    • NotMyDad
    • Thread
    • bulbar bulbar onset choke choking conversation death dementia eating family father feeding feeding tube food onset
    • Replies: 11
    • Forum: Current caregivers
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