Really did not know where to put this so here goes.
Thanks....
For being great compasionate friends
For lifting me up when I was down
For laughing and crying with me
For sticking by me when close friends and family have failed me
For truly caring
For still caring
Love to you all♥
I mean for me.....not my Mom who has been stricken by this horrible disease. I don't know if it is the meds she is on or the FTD she has, probably a combo of them both. She has very little emotions going on. I ask her all the time......However, I am amazed at how many emotions I can go through...
I took my son to an open house at a new school. Sitting in the auditorium, I noticed lots of fathers with their sons. One in particular was three rows down and hugging his son. My son became very agitated as the speaker enthusiastically went on about fundraisers. I was upset with him because...
Hey all,
I'd like to start by mentioning how glad I am that a community like this exists out there. Reading stories on this board somewhat comforts me. Both the perseverance of many of the posters here in fighting this disease and their optimism is incredibly admirable.
So, before I get to my...
Well, yesterday I woke up and got ready for work, Mom didn't stop by at 7am like she normally does. So I called her and no answer. I find out shortly after that Mom's sister (the fake one who is milking the disability system and cares only for herself) has picked her up at 5am so they can take...
Hi to everyone,
I apologize for not having had been on the forum for quite a while, but I've been awfully busy (no excuse, as I also need to support other with my insights on this nasty disease). Therefore, mea magna culpa.
What are your thoughts concerning acute exacerbations of PLS...
age
angry
baclofen
bed
crying
depressed
depression
fatigue
fell
flu
food
klonopin
leg pain
life
meds
muscles
nausea
night
onset
pain
pls
problems
pseudobulbar
pseudobulbar affect
quality of life
sad
seizures
sleep
support
symptom
symptoms
symptoms?
I am mad my dad is not here to celecbrate his wedding anniversary with my mom. I am mad I can't call and wish you "happy anniversary". I am mad that I am not going to hear about where you went to eat. I am mad I won't hear about what you ate. I am mad. I'm so mad I can't stop crying. I guess I...
Hi Everyone! I'm new here and can't express enough how glad I am to find all of you. My sweet man (fiancee) was diagnosed Dec 2011 and has progressed since then to a PWC with no use of arms, hands or legs. I have felt so completely alone until now. I think I stayed in denial until this past...
He was like a younger, more sarcastic Santa Claus: While the rest of Sacramento slept, Dad would tumble (sometimes literally) out of bed to deliver the morning newspaper to every half-hidden house nestled within the unpaved Delta wetlands. He would come home at sunrise, smelling of coffee and...
als
back
bed
bipap
breathing
children
crying
dad
early
eyes
family
father
feeding
feeding tube
gifts
goodbye
happiness
heart
hours
immediately
legacy
life
nose
paralyzed
power wheelchair
pressure
sad
shaking
story
thumb
trip
voice
wanted
wheelchair
After all my worry of ALS, I've decided to put it on the back-burner and look at things like EBV/Lyme/CMV. I've been feeling a bit better over these past weeks (dry gross taste gone, smelling is back), still have some joint pain, burning, and twitching. Still do get very hot sometimes but my...